Analyze

“Environmental justice (EJ) scholars and activists see communities’ ability to participate meaningfully in decisions that affect the local environment, including siting decisions for refineries, power plants, waste dumps, and the like, to be integral to the idea of EJ (Cole and Foster 2001; Schlosberg 2007). For some, this explicitly includes the notion of consent: participatory processes are a means through which community members can give their consent (or not) once they fully understand the scope and consequences of a proposal (Shrader-Frechette 2005, 2007).” (252)

“EJ advocates have called attention to siting practices that target communities of color because of their political margin- alization. In order to challenge the siting of hazardous facilities, commu- nities of color have also had to confront exclusionary decision-making processes characterized by unrepresentative local governments, monolingual proceedings, and reliance on technocratic risk assessments, to name a few (Cole and Foster 2001). As a result, one of the Principles of EJ adopted in 1991 by the People of Color Environmental Leadership Summit calls explicitly for justice in decision-making practices: ‘‘Environmental Justice demands the right to participate as equal partners at every level of decision-making.’’ (254)

“Seeing disclosure as an important element of informed consent provides ethical grounds to excoriate polluting industries for suppressing information, making misleading scientific claims, and intimidating scientists who wish to draw attention to the health risks they pose (see, e.g., Schrader-Frechette 2007, 39-75).” (255)

“Current discussions of procedural justice in the siting of environmentally hazardous facilities are far from na ̈ıve about the limitations of scientific knowledge. EJ advocates have not only criticized industry and government scientists for patently unethical practices like suppressing data (e.g., Shrader-Frechette 2007), they have pointed out the ways that scientific ways of knowing and technocratic modes of decision making can circumscribe community members’ ability to have a say in decisions that will affect their local environments (Guana 1998; Shrader-Frechette 1991); they have also asserted the need for community members’ local knowledge to be recognized as part of just decision-making procedures (Allen 2003; Fischer 2000).” (263)

This text explores some of the current barriers to achieving procedural justice (participation in decision making by those affected by it) based on Science and Technology Studies (STS). Examples of some of these fundamental barriers include (i) lack of disclosure of information from industry, and (ii) lack of information available at the time of decision making (making consent to be subject to environmental hazards difficult or impossible. The author argues for proactive, STS-based knowledge generation to combat this.

What data platforms are windows into data culture and politics in this setting?

What could one learn about Baltimore through a close analysis of the "Boston Tree Inventory" or through close work with CalEnviroScreen (noticing what gets pulled into visibility and what remains off-screen)? 

What kind of data infrastructures are imagined as needed n this setting and for what historical and contemporary reasons? In Austin, for example, energy transition actors have worked to establish energy data infrastructure that is separate from established data infrastructures supported by power companies, etc. 

What ideals are data collected to protect or to contest?

The purpose of this program is to help instill into nurses, doctors, social workers and more with the ability to mix their clinical practice with the ability to interpret, recognize and be moved by stories of illness according to their mission statement. This program is for those that want to improve the effectiveness of their care by increasing their familiarity with the skill of narrative medicine. 

Columbia University was one of the first medical schools to open a program in Narrative Medicine. This program was built within their College of Physicians and Surgeons. Rita Charon is the executive director of the program and is on the forefront of spreading the need for narrative medicine in the medical field. Colleagues of hers also believe that medicine has become too professional and clinical, and doctors focus on treating medical problems based off symptoms, not the patient. The educational program at Columbia created the opportunity to earn a Masters of Science degree in Narrative Medicine in 2009, making to one of the first programs devoted to only narrative medicine. 

This program is located within an institution, Columbia University's Medical Center and College of Physicians and Surgeons. 

This program is funded by tuition paid for my students (or maybe some form of scholarship, on a case by case basis.) Columbia University is a private institution, and those enrolled in this program pay a tuition for cost of the education and resources. 

This prgram is only offered in-camous adn takes roughtl 2-6 terms  to cp,plete. earnign the degree requires 38 points. Menaing fuill time studnes can copelte the program in one academic year and a summer. The degree requirements include  five Core Courses in Narrative Medicine (22 points) and the Research Methodology course (4 points), which is required for all students who have not taken a graduate-level course in research methodology. The other 12 to 16 points may include any combination of additional Topics in Narrative Medicine courses, elective courses chosen from other departments, Independent Study and/or Capstone (two to four points).

Requirements to apply are a Bachelor’s degree or its equivalent and demonstrable evidence of promise in the field of narrative medicine according to the admissions website. Ultimately, those looking to enter the medical field in any capacity are the main targeted demographic for this program. The goal is to instill into doctors, nurses, PAs, social workers, etc, the idea of incorporating narrative medicine into their clinical work. Those predisposed to healthcare fields are likely optimal candidates for this program.