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Louisiana, US_EiJ Paraconference

Misria

In Louisiana, governing elites have long found it more profitable to deny the connections between health outcomes and the structural inequities of an anti-Black petrostate. Their denial is made possible by the existence of data divergence–that is, inconsistencies between data sets or between a data set and the realities it purports to represent (Encyclopedia of Social Measurement 2005). These inconsistencies range from missing or “undone” (i.e. incomplete or ignored) data (Frickel et al. 2007) to the production of different measures (and the selection of different priorities) by institutional silos. Recognition of the need for public health capacities that address the systems and structures impacting health–especially children’s health–has motivated health equity advocates in Louisiana to fill the data gaps through collaborative datawork, that is, the work of making data meaningful across social and scientific communities. In 2022, a coalition of community organizations, academic researchers, and public health workers led by the Louisiana Center for Health Equity (LCHE), a community-based organization created by a registered nurse, worked together to examine the links between adolescent mental health and disciplinary practices in schools. Ensuring their agendas were informed by community priorities led them to incorporate the contributions of adolescents advocating for better access to physical and mental healthcare resources and the abolishment of discriminatory and punitive disciplinary actions in schools. Their collaborative datawork revealed how data gaps around adolescent mental health are a structuring component of schools’ discriminatory and punitive climates–much as gaps in environmental health data benefit polluting industries. They found that existing figures around adolescent mental health are inaccurate, as many youth are unable to receive an official diagnosis owing to lack of healthcare access. LCHE advocates at a house committee meeting in January 2023 reported that students who exhibit behavioral issues rooted in trauma or mental health more often receive punitive disciplinary actions rather than rehabilitative and restorative services. This work generated the support needed to pass legislation to expand public health infrastructure and access to mental health resources. In June 2023, House Bill 353 authorized the allotment of "mental health days" as an excused absence for students; introduced procedures for schools to connect students to medical treatment and services; and required the Louisiana Department of Education to develop and administer a pilot program for implementing mental health screening, among other changes. By mobilizing advocates and scholars from across the social and institutional silos, LCHE’s collaborative datawork tentatively expanded children’s public health infrastructures. 

Fisher, Margaux. 2023. "Collaborative Datawork and Reframing Adolescent Mental Health in the Deep South." In 4S Paraconference X EiJ: Building a Global Record, curated by Misria Shaik Ali, Kim Fortun, Phillip Baum and Prerna Srigyan. Annual Meeting of the Society of Social Studies of Science. Honolulu, Hawai'i, Nov 8-11.

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wolmad

This film is designed to have an emotional appeal. Very little scientific evidance is provided, and most of what we see are images and naratives about the effects of ebola from the public's perspective. Powerful images and stories, such as the death of a pregnant women on the side of the road, the closing of hospitals, and the turning away of patients are predominantly displayed. Much of this movie is told from the perspective of a student of the University of Wisconsin, and there was a large amount of dialouge about how he tried to get his family out of the effected zone. The only notable statistics given in the film was at the end, when the number of effected and the number of deaths were compared. 

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wolmad

The stakeholders discribed in the film was the general population of Liberia. They had shared experiances of seeing the effects of ebola, innitially being in denial of its severity, then finally seeing the entire liberian public health system be overwhelmed and fail by an apparently unstopable and horrifying disease. The people effected needed to make difficult decisions about how to avoid contracting the disease, how to protect their families, and how to deal with the emotional strain placed on them by the epidemic.

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Alexi Martin

The main point of the article is despite the positive impact doctors/nurses and those who advocate against Ebola, many of the citizens in remote areas do not trust those who have the resources to 'cure' or to eradicate the illness, instead they believe that these workers bring diease. Some resort to violence  to reaffirm this point through stoning healthcare workers and even killing them. This article exposes the issues on treating an epidemic, the 'growing pains' of helping thrid world countries and the dark side of helping others. The article is supported through direct quotes from healthcare workers as evidence (stats) and quotes from people that live in West Africa.

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Alexi Martin

The actors that the article refer to is the healthcare workers, those who have experienced this violence. Those who feel that their perogitive to help others (and to do their jobs) is greater than 'offering themselves up' to the people of these tribes who feel that they are doing more harm then good. Another actor is people from the villages who describe what has happened. The discovery of these murdered healthcare workers and their opinions on the Ebola workers- they do not want them near their tribes at all. Outside worldwide coordinators also comment on the tradegies of the death and the affects it has on the treatment of Ebola. The Red Cross is also an actor, their workers were afraid/chased by locals due to wearing "Ebola gear".

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Alexi Martin

The article addresses emergency response because it talks about the dark of helping people. The side people never hear about, those who do not want help or those who do not trust the help they are recieving. The volunteers (emergency response) that is provided is not recieved well, it says how the structure of helping these people needs to be changed so people believe that prevention will not bring diease.

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wolmad

Liberian emergency responders are portrayed in the film as being completely overwhelmed by the situation at hand and unable to cope with the nature of the illness, people's innitial denial to the extreme communicability of the disease, and the sheer number of patients. Most predominantly, first responders are illustrated by 2 abandoned ambulances on the side of a road and by the story of a woman saying that an ambulance was called to a dying pregnant woman and they ended up leaving her on the side of the road for an ebola crew to respond to, which came too late.