Skip to main content

Analyze

Hawai'i, Arizona, Italy, South Africa, Australia

Misria

Astrophysics is a discipline that has a lot to do with environmental justice, even if it doesn’t look like so. Astrophysics research nowadays involves both large cutting-edge infrastructures and a great number of people and institutions, usually at international level. Most of these projects require to be placed in very specific environments, which are not very common on our planet, to function in the best conditions. The territories chosen to host large facilities for astrophysics, as remote as they can be, are not empty. In most cases, they are inhabited (or regularly frequented) by people who are not always involved in the decision process and may see the construction as an invasion of lands they have owned or occupied for centuries. In this context, we believe that what pulls people away from environmental justice advocacy, especially those who do not live in or near these territories, is the lack of information and awareness about this topic, which may cause strongly polarized opinions and harshful discussions on the topic. To try to fill this gap, as science communicators we decided to develop a game-based activity which fosters the debate about this connection. Among our inspirations is the struggle of the protectors of Mauna a Wākea, on the Big Island of Hawai‘i. The mountaintop is a sacred place for Native Hawaiians, who have been fighting to protect their ancestral land from the construction of the Thirty Meter Telescope (TMT). There are many other examples of large astronomical infrastructures and their impact on territories, including in our own country (Italy), some more virtuous than others, that show how the Astrophysics research world is strongly connected to environmental justice. For this activity, we chose the Creative Commons PlayDecide format, which aims to facilitate simple, respectful and fact-based group discussions. The game consists of a different set of cards containing facts about the topic, issues for different interest groups and personal stories of fictional individuals who are involved or affected by the topic. By telling the stories of different characters involved in this kind of situation, we aim to enlarge the debate, fostering the change of perspective of players. We wish that many people around the world download and use the game, either during public outreach activities with schools and the general public or as a self-awareness exercise within the astronomical community. The game does not refer to a specific facility, but we researched study cases related to astronomical observatories in sites such as Mauna a Wākea (Hawaiʻi), Kitt Peak and Mount Graham (Arizona), the Sardinia Radio Telescope in Italy as well as ongoing projects such as the SKA Observatory in South Africa and Australia. In particular, for the story cards, we strived to provide a balance in terms of gender and affected communities, trying as much as we could to avoid stereotypes, in the awareness that we, as the authors of the activity, are a group of white, female astronomers from a G7 country.

Toniolo, Rachele and Claudia Mignone. 2023. "Some students play the PlayDecide activity at a Science Festival in Italy." In 4S Paraconference X EiJ: Building a Global Record, curated by Misria Shaik Ali, Kim Fortun, Phillip Baum and Prerna Srigyan. Annual Meeting of the Society of Social Studies of Science. Honolulu, Hawai'i, Nov 8-11.

pece_annotation_1474821427

Sara_Nesheiwat
Annotation of

This registry allows for the tracking of the health effects of the 9/11 disaster. It is open to the public, where they can see the most common disorders and afflictions that those effected by 9/11 are dealing with today. The public can access this website and read up on the rates of lung infection, heart disease, PTSD, alcohol use, as well as the effect it has had on adolescent health. This registry was not only set up for the public use though, it is also used and produced by researchers. The researchers track the longterm health effects 9/11 has had on those exposed. The data also provides experts and researchers with the means to draw conclusions and analyses. Learning about the long term effects of 9/11 will raise awareness as well as allow for the understanding of how disasters of this caliber can effect those around it, in both long term and short term ways. 

pece_annotation_1474824166

Sara_Nesheiwat
Annotation of

Researchers use this system extensively in order to find correlations between 9/11 and different repercussions as well as to collect and gather data about those who were exposed during 9/11. A unique aspect of this registry is that it contains more participants than any other registry of its kind, making it a great tool for researchers. The public also utilizes this information to study their own forms of various research as well as to gain knowledge on possible afflictions related to the event. The registry also follows up with participants with interviews and matches with other health registries. The website also offers resources to researchers to learn more about the research at hand and where to find other published reports about 9/11.

pece_annotation_1474825350

Sara_Nesheiwat
Annotation of

As mentioned, this site offers data on long term health afflictions of those exposed to 9/11. Yet the site also offers information about the participants in the registry. How they were selected, how many people are entered in the registry and where their exact locations were during the attacks. On top of providing data on the participants, the site also offers information on funding, as well as access to annual reports addressing the health impacts of 9/11. The site also gives access to those that the registry works with and collaborates with. The history behind the registry and the attacks are also provided. Sources for all data and a full bibliography is also available along with information about legal aspects of the health and compensation act, enrollee's confidentiality and thousands of other resources. 

pece_annotation_1474825835

Sara_Nesheiwat
Annotation of
In response to

The data is mainly visualized in report form. There is also a section of the site where data and statistics that have been confirmed are written out separated by disease/disorder type. So in the "what we know" tab PTSD, depression, tobacco use, asthma, lung function, respiratory issues, heart disease and adolescent health are separated into different sections with confirmed disease rates, correlations and numbers listed beneath each section. The same group that runs this registry in terms of research, called the 'WTC Medical Working Group' also provides links to other current studies on the matter, some of which they have partaken in. 

pece_annotation_1474826788

Sara_Nesheiwat
Annotation of

This site runs like any run of the mill website. If there are any issues or questions about the website there is contact information provided to seek assistance with the site or ask questions regarding the information. 

By phone: 866-692-9827
By email: wtchr@health.nyc.gov
By fax: 347-396-2893
By mail: WTC Health Registry
New York City Department of Health and Mental Hygiene
42-09 28th Street, CN 6W
Queens, NY 11101-4132

pece_annotation_1474827275

Sara_Nesheiwat
Annotation of

This health registry relies heavily on collaborations and other organizations. There is actually an entire section of the website dedicated to listing all the organizations that collaborate and work together in order to provide this information for the registry. The registry is a collaborative effort between the US Department of Health and Human Services and NYC. 

There are 3 advisory groups that work with WTC health Registry, they are the Community Advisory Board, the Labor Advisory Board and the Scientific Advisory Board. The following organizations are also listed as organizations that this registry depends on for research, number and data:

Government

  • National Institute for Occupational Safety and Health (NIOSH)
  • Agency for Toxic Substances and Disease Registry (ATSDR)
  • Centers for Disease Control and Prevention (CDC)

Scientific 

  • Albert Einstein College of Medicine
  • Boston University – School of Public Health
  • City University of New York – Graduate School of Public Health and Health Policy
  • City University of New York - Hunter College
  • City University of New York - Queens College
  • Columbia University - Mailman School of Public Health
  • Columbia University – Medical Center
  • Columbia University - New York Psychiatric Institute
  • Cornell University
  • Fire Department of New York City (FDNY) - Bureau of Health Services
  • Fordham University
  • HHC WTC Environmental Health Center at Bellevue Hospital Center
  • Hospital for Special Surgery
  • Johns Hopkins University - Bloomberg School of Public Health
  • Mount Sinai Medical Center
  • New School University
  • New York City Police Department - Chief Surgeon's Office
  • NYU Medical Center
  • New York State Department of Health
  • Rutgers University
  • San Francisco State University
  • State University of New York – Albany – School of Public Health
  • State University of New York - Stonybrook
  • State University of New York -Stonybrook University Medical Center
  • University of California – San Francisco – School of Medicine
  • University of Greenwich (United Kingdom)
  • Weill Cornell Medicine

pece_annotation_1474830801

Sara_Nesheiwat
Annotation of

There are many websites and papers that cite this website due to the extensive amounts of data that are collected from this site. The website provides a lot of information and data based off health afflictions as a result of 9/11. Since this registry is the largest of its kind, data from it is pulled for numerous studies on 9/11 and its health effects.