Analyze

Residents of Love Canal, in the Niagara Falls region of Western New York, were alerted to signs of a toxic waste crisis involving the lethal chemical byproduct dioxin in the late 1970s. Residents learned about the crisis through news media, community activism and research, and their own visceral experiences – they could smell noxious fumes, noticed black sludge seeping into their basements, and saw children falling ill. Activists and academics carried out community-based research to survey the area in an effort to understand the extent of the hazard and its effects – data that they saw as missing, at the time – in turn generating evidence of changes in health and pregnancy abnormalities. In doing so, members of the community aimed to hold corporate and government stakeholders accountable to evacuate residents, organize remediation, and strengthen scientific studies and interventions to care for residents. Regional health authorities, however, dismissed community-based studies as “useless housewife data”. Activists responded by scrutinizing government and scientific studies, critiquing a lack of ecological validity and trustworthiness. Residents and community groups’ advocacy contributed to their exercise of epistemic authority, the creation of archival records and initiatives tracking the crisis over the last five decades, and wider public attention to Love Canal and other sites like it.

Image Description and Source: "Map showing distribution of symptoms believed to be caused by Love Canal pollutants," Digital Collections - University at Buffalo Libraries, May 1982.

Shankar, Saguna. 2023. "What's the Use of Data? Epistemic Authority and Environmental Injustice at Love Canal." In 4S Paraconference X EiJ: Building a Global Record, curated by Misria Shaik Ali. Kim Fortun, Phillio Baum and Prerna Srigyvan. Annual Meeting of the Society for Social Studies of Science. Honolulu, Hawaiti, Nov 8-11.

The aim of this organization is to use medicine and science to record and focus on mass atrocities and human rights violations. The organization was founded on the idea that health care professionals possess skills that pose credibility to those who are persecuted sexually, morally, socially and economically. As health care professionals, they have the opportunity to hold people accountable for their actions. Examples of this include torture, sexual violence, civil unrest- it is their job to protect civilians' basic human rights.

Their membership consists of scientists, healthcare professionals and doctors. 

This organization has invesitgated ad exposed the use of chemical weapons on civilazations in Iraq, exhumed mass graves in Bosnia and Rwanda. They seaked to expose government torture and abuse of civial rights in many countries including-Columbia, Mexico, Peru, Sierra Leone and others. They approach disaster and emergency response through trying to stop them by exposing abuses to human rights. They investigate using human accounts and first hand experience. Through using their resources to expose injustice. They have won a noble peace prize for documenting landmine injuries and calling to ban them.

This group claims to have a new way of addressing emergency situations through using their process of stopping events that are already in progress through investigating the abuses, documenting evidence and stories and using their evidence as a call for action.

The events that motivated their ways of thinking about disaster and health was in 1981 a physician in Boston was called to go to Chilie to investigate the 'disapperance' of three physicians. Johnathan Fine entered the country and met the doctors who were psychologically terrorized. He heard their testimonies and recorded the,. It inspired him to go to Guatemala, Philipines and South Korea to educate about human rights globally. Dr Fine's visit caused the doctors to be released; he decided he wanted to help these people in situations about this full time. In 1986 Robert Laurence, Jean Mayer and Fine created Physicians for Human Rights.

The funding that enables their work to go and help others is through many methods of donation, they recieve grants and investments.

The data/reports they have collected to support their approach to help disaster include annual reports and newsletters that define the issues they are currently focusing on: what it includes, how one person can help. Their website also includes resources that describe the issue they are tackling their position and what is going on to prevent/cure the problem. Their website has experts, a university that specializes on 'empowering global communities' in order to be able to recoginze their lack of human rights. They also have a blog and first hand video accounts.

The research the organization has done in the past year is calling for the closure of Guantanomo Bay and ensuring that the US accepts Syrian refugees. They have taken first hand accounts of individuals in both circumstances. They provide annual reports for each year of the work they have accomplished these reports are extensive and explain what human rights were taken away and what PHR has done to help.

They rely on the internet, videos, blogs and first hand accounts in order to spread awareness.