Analyze

"An EJ approach could provide new and different tactics to prisoner advocates and their allies.  If we understand death row inmates to be a particularly vulnerable population, could the EPA itself become more involved in monitoring conditions, and if so, what are the benefits or risks of such an approach? " (219)

"Instead of environmentally invisible spaces, death row should be viewed as involuntary state homes and therefore particularly deserving of attention and regulation. " (220)

"the EPA’s unique powers can be characterized as (1) information gathering, and (2) enforcement actions.93  The EPA’s tools apply to carceral facilities as they would any other business or agency.  By statute, the EPA has the authority to enter and inspect facilities, to request information, and assist facilities in developing or remedying violations." (220) ...  "Individual EPA offices have at times attempted to examine the conditions of incarceration at several federal facilities, primarily through information gathering.  For example, under an agreement between the EPA and the federal Bureau of Prisons (BOP) in 2007, over a dozen facilities were audited for environmental hazards.100  These consent arrangements can promote environmental improvement by limiting the potential sanctions for discovered violations." (221)

"Through an environmental justice lens, we may see patterns that were previously hidden.  Unlike traditional prisoner advocacy tools, environmental assessments include cumulative impacts over time and in context, rather than single isolated acts." (224) ... "A pattern-based approach may help to discern the underlying factors that result in diagnoses like Glenn’s. " (225)

"An EJ approach fundamentally centers the voices of the impacted and allows for contextual reasoning.  Although carceral facilities, and death row in particular, are externally perceived as sites of punishment, incarcerated people may have a different view.  Glenn Ford’s cell, where he was confined days at a time, was his involuntary home.  Viewing jails and prisons as homes illuminates the humanity of the people who live there.  Understanding these spaces as homes underlines the need for carceral facilities to be safe and for individuals to be protected from all types of harm, environmental and otherwise.124 " (225)

"Based on Glenn Ford’s experience, the conditions on death row in Louisiana can be grouped into the following environmental hazards:  indoor air pollution, water pollution, hazardous waste, and exposure to lead." (217)

"Glenn’s story of the conditions on death row is a story about environmental justice.  His accounting forces us to see prisons as involuntary homes, where residents are held captive to environmental harms.  Yet, the experience of Glenn and others sentenced to live on death row are largely excluded from environmental justice conversations.10" (207)

"The U.S. Environmental Protection Agency (EPA) itself has acknowledged that carceral facilities present environmental challenges.11  In 2007, the EPA noted that “[p]otential environmental hazards at federal prisons are associated with various operations such as heating and cooling, wastewater treatment, hazardous waste and trash disposal, asbestos management, drinking water supply, pesticide use, and vehicle maintenance.”12  Yet, the EPA, which is the lead federal agency for environmental justice, completely excluded jails and prisons from its 2011 planning document for addressing environmental justice through 2014.13  Similarly, the EPA’s 2020 Action Agenda for environmental justice does not even mention carceral facilities, much less recognize prisons and jails as environmentally “overburdened communities.”14 " (207)

"Data on conditions within carceral facilities is generally not available,53 and even when it is available, the data is rarely complete." (214)

This registry allows for the tracking of the health effects of the 9/11 disaster. It is open to the public, where they can see the most common disorders and afflictions that those effected by 9/11 are dealing with today. The public can access this website and read up on the rates of lung infection, heart disease, PTSD, alcohol use, as well as the effect it has had on adolescent health. This registry was not only set up for the public use though, it is also used and produced by researchers. The researchers track the longterm health effects 9/11 has had on those exposed. The data also provides experts and researchers with the means to draw conclusions and analyses. Learning about the long term effects of 9/11 will raise awareness as well as allow for the understanding of how disasters of this caliber can effect those around it, in both long term and short term ways. 

Researchers use this system extensively in order to find correlations between 9/11 and different repercussions as well as to collect and gather data about those who were exposed during 9/11. A unique aspect of this registry is that it contains more participants than any other registry of its kind, making it a great tool for researchers. The public also utilizes this information to study their own forms of various research as well as to gain knowledge on possible afflictions related to the event. The registry also follows up with participants with interviews and matches with other health registries. The website also offers resources to researchers to learn more about the research at hand and where to find other published reports about 9/11.

The registry is funded with federal tax dollars. New York City itself has funded specific projects for the registry research, for example the respiratory study of Lower Manhattan. The registry is hosted by NYC Department of Health and Mental Hygiene but is mostly paid for by federal taxes. 

As mentioned, this site offers data on long term health afflictions of those exposed to 9/11. Yet the site also offers information about the participants in the registry. How they were selected, how many people are entered in the registry and where their exact locations were during the attacks. On top of providing data on the participants, the site also offers information on funding, as well as access to annual reports addressing the health impacts of 9/11. The site also gives access to those that the registry works with and collaborates with. The history behind the registry and the attacks are also provided. Sources for all data and a full bibliography is also available along with information about legal aspects of the health and compensation act, enrollee's confidentiality and thousands of other resources. 

The data is mainly visualized in report form. There is also a section of the site where data and statistics that have been confirmed are written out separated by disease/disorder type. So in the "what we know" tab PTSD, depression, tobacco use, asthma, lung function, respiratory issues, heart disease and adolescent health are separated into different sections with confirmed disease rates, correlations and numbers listed beneath each section. The same group that runs this registry in terms of research, called the 'WTC Medical Working Group' also provides links to other current studies on the matter, some of which they have partaken in. 

This site runs like any run of the mill website. If there are any issues or questions about the website there is contact information provided to seek assistance with the site or ask questions regarding the information. 

By phone: 866-692-9827
By email: wtchr@health.nyc.gov
By fax: 347-396-2893
By mail: WTC Health Registry
New York City Department of Health and Mental Hygiene
42-09 28th Street, CN 6W
Queens, NY 11101-4132

This health registry relies heavily on collaborations and other organizations. There is actually an entire section of the website dedicated to listing all the organizations that collaborate and work together in order to provide this information for the registry. The registry is a collaborative effort between the US Department of Health and Human Services and NYC. 

There are 3 advisory groups that work with WTC health Registry, they are the Community Advisory Board, the Labor Advisory Board and the Scientific Advisory Board. The following organizations are also listed as organizations that this registry depends on for research, number and data:

Government

• National Institute for Occupational Safety and Health (NIOSH)
• Agency for Toxic Substances and Disease Registry (ATSDR)
• Centers for Disease Control and Prevention (CDC)

Scientific 

• Albert Einstein College of Medicine
• Boston University – School of Public Health
• City University of New York – Graduate School of Public Health and Health Policy
• City University of New York - Hunter College
• City University of New York - Queens College
• Columbia University - Mailman School of Public Health
• Columbia University – Medical Center
• Columbia University - New York Psychiatric Institute
• Cornell University
• Fire Department of New York City (FDNY) - Bureau of Health Services
• Fordham University
• HHC WTC Environmental Health Center at Bellevue Hospital Center
• Hospital for Special Surgery
• Johns Hopkins University - Bloomberg School of Public Health
• Mount Sinai Medical Center
• New School University
• New York City Police Department - Chief Surgeon's Office
• NYU Medical Center
• New York State Department of Health
• Rutgers University
• San Francisco State University
• State University of New York – Albany – School of Public Health
• State University of New York - Stonybrook
• State University of New York -Stonybrook University Medical Center
• University of California – San Francisco – School of Medicine
• University of Greenwich (United Kingdom)
• Weill Cornell Medicine