Analyze

In Louisiana, governing elites have long found it more profitable to deny the connections between health outcomes and the structural inequities of an anti-Black petrostate. Their denial is made possible by the existence of data divergence–that is, inconsistencies between data sets or between a data set and the realities it purports to represent (Encyclopedia of Social Measurement 2005). These inconsistencies range from missing or “undone” (i.e. incomplete or ignored) data (Frickel et al. 2007) to the production of different measures (and the selection of different priorities) by institutional silos. Recognition of the need for public health capacities that address the systems and structures impacting health–especially children’s health–has motivated health equity advocates in Louisiana to fill the data gaps through collaborative datawork, that is, the work of making data meaningful across social and scientific communities. In 2022, a coalition of community organizations, academic researchers, and public health workers led by the Louisiana Center for Health Equity (LCHE), a community-based organization created by a registered nurse, worked together to examine the links between adolescent mental health and disciplinary practices in schools. Ensuring their agendas were informed by community priorities led them to incorporate the contributions of adolescents advocating for better access to physical and mental healthcare resources and the abolishment of discriminatory and punitive disciplinary actions in schools. Their collaborative datawork revealed how data gaps around adolescent mental health are a structuring component of schools’ discriminatory and punitive climates–much as gaps in environmental health data benefit polluting industries. They found that existing figures around adolescent mental health are inaccurate, as many youth are unable to receive an official diagnosis owing to lack of healthcare access. LCHE advocates at a house committee meeting in January 2023 reported that students who exhibit behavioral issues rooted in trauma or mental health more often receive punitive disciplinary actions rather than rehabilitative and restorative services. This work generated the support needed to pass legislation to expand public health infrastructure and access to mental health resources. In June 2023, House Bill 353 authorized the allotment of "mental health days" as an excused absence for students; introduced procedures for schools to connect students to medical treatment and services; and required the Louisiana Department of Education to develop and administer a pilot program for implementing mental health screening, among other changes. By mobilizing advocates and scholars from across the social and institutional silos, LCHE’s collaborative datawork tentatively expanded children’s public health infrastructures. 

Fisher, Margaux. 2023. "Collaborative Datawork and Reframing Adolescent Mental Health in the Deep South." In 4S Paraconference X EiJ: Building a Global Record, curated by Misria Shaik Ali, Kim Fortun, Phillip Baum and Prerna Srigyan. Annual Meeting of the Society of Social Studies of Science. Honolulu, Hawai'i, Nov 8-11.

How are Data Gaps Worked Around:

Sarnia, and the surrounding area around chemical valley, have 9 air monitoring stations in which air pollutants are monitored from the nearby petrochemical complex. Until 2017, only data from one of these stations (the one on Christina Street in downtown Sarnia) was publicly available. This created a gap in accessiblility of important data for sarnia and the nearby AFN residents. In September 2015, the Clean Air Sarnia and Area group launched as a "community advisory panel made up of representatives from the public, government, First Nations, and industry, who are dedicated to providing the community with a clear understanding of ambient air quality in the Sarnia area." This group works to improve air quality in Sarnia by making information about air quality publicly available and by making recommendations to relevant authorities. In 2018, this group launched the website: https://reporting.cleanairsarniaandarea.com/ (also uploaded as an artifact) which allows public to access data from the air quality monitoring stations and understand how air quality compares to Ontario's standards. This site works to fill the gap of publicly available air quality data in Sarnia.

This report from Ecojustice shows a decline in air pollution compared to Ecojustice's first report released in 2007 for the area around Chemical Valley, yet Sarnia industries continue "to release far more pollution, and in particular far more SO2 , than comparable U.S. refineries." One contributor to the continued excessive emissions is Ontario's lagging air quality standards. The report notes that "Ontario’s AAQC and air quality standards are lagging behind current science on the health impacts of air pollutants, which may put the health of residents at risk." The report highlights pollutants where Ontario's standard is above the national standard or where Ontario has no standard at all. Additionally, Sarnia's benzene emissions are exempt from Ontario's health-based standard for this chemical and are instead regulated by  "an industry technical-based standard" allowing benzene levels to be far higher than the health-based standard. The lagging, lack of, or exemption from regulation undercut efforts in monitoring and reducing emissions to a "safe" level as what is considered "safe" by standards is out of line with what is considered "safe" by health and other standards.