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Hawai'i

Misria

The ASTROMOVES project captures the career decision-making of astrophysicists and those in adjacent sciences, with particular attention to ‘intersectional’ identities, sex/gender diversity and visible/invisible disabilities. Qualitative interviews were recorded online (due to the Pandemic) and each scientist was assigned an Indigenous Hawaiian pseudonym. This was a subversive move to remind astrophysicists of the enormous debt they owe to the Hawaiian people for the use of their sacred mountain tops. All of the scientists consented to having a Hawaiian name. Seven scientists chose their own pseudonyms, most were Hawaiian place names: Maui, Waikiki, Waiheke, and Holualoa. Two Brazilians likewise chose Indigenous place names: Caramuru and Paraguaçu. The last name chosen was Kū'oko'a. Kū'oko'a is the Hawaiian concept of freedom, of which I was unaware. When questioned by editors, I had to evoke my Oahu birth as my right to use Hawaiian pseudonyms. For my visualizations, I chose to not use the Mercator projection which artificially enlarges Europe, instead I use the Peters projection or equal area map. Thus, Europe is de-emphasized by showing its area relative to the rest of the world. 

Holbrook, Jarita. 2023. "Visualizing Astrophysicists’ Careers." In 4S Paraconference X EiJ: Building a Global Record, curated by Misria Shaik Ali, Kim Fortun, Phillip Baum and Prerna Srigyan. Annual Meeting of the Society of Social Studies of Science. Honolulu, Hawai'i, Nov 8-11

What quotes from this text are exemplary or particularly evocative?

annika

“Environmental justice (EJ) scholars and activists see communities’ ability to participate meaningfully in decisions that affect the local environment, including siting decisions for refineries, power plants, waste dumps, and the like, to be integral to the idea of EJ (Cole and Foster 2001; Schlosberg 2007). For some, this explicitly includes the notion of consent: participatory processes are a means through which community members can give their consent (or not) once they fully understand the scope and consequences of a proposal (Shrader-Frechette 2005, 2007).” (252)

“EJ advocates have called attention to siting practices that target communities of color because of their political margin- alization. In order to challenge the siting of hazardous facilities, commu- nities of color have also had to confront exclusionary decision-making processes characterized by unrepresentative local governments, monolingual proceedings, and reliance on technocratic risk assessments, to name a few (Cole and Foster 2001). As a result, one of the Principles of EJ adopted in 1991 by the People of Color Environmental Leadership Summit calls explicitly for justice in decision-making practices: ‘‘Environmental Justice demands the right to participate as equal partners at every level of decision-making.’’ (254)

“Seeing disclosure as an important element of informed consent provides ethical grounds to excoriate polluting industries for suppressing information, making misleading scientific claims, and intimidating scientists who wish to draw attention to the health risks they pose (see, e.g., Schrader-Frechette 2007, 39-75).” (255)

“Current discussions of procedural justice in the siting of environmentally hazardous facilities are far from na ̈ıve about the limitations of scientific knowledge. EJ advocates have not only criticized industry and government scientists for patently unethical practices like suppressing data (e.g., Shrader-Frechette 2007), they have pointed out the ways that scientific ways of knowing and technocratic modes of decision making can circumscribe community members’ ability to have a say in decisions that will affect their local environments (Guana 1998; Shrader-Frechette 1991); they have also asserted the need for community members’ local knowledge to be recognized as part of just decision-making procedures (Allen 2003; Fischer 2000).” (263)

 

What is the main argument, narrative and effect of this text? What evidence and examples support these?

annika

This text explores some of the current barriers to achieving procedural justice (participation in decision making by those affected by it) based on Science and Technology Studies (STS). Examples of some of these fundamental barriers include (i) lack of disclosure of information from industry, and (ii) lack of information available at the time of decision making (making consent to be subject to environmental hazards difficult or impossible. The author argues for proactive, STS-based knowledge generation to combat this.

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Sara.Till

Byron Good, Ph.D., is a professor of Medical Anthropology at Harvard Medical School. His primary area of research is mental illness and how social perceptions evolves around these issues, in terms of both treatment and social acceptance. Dr. Good has several works on these issues, including several that explore the perspective of bio-medicine in non-western medical knowledge, the cultural meaning of mental illness, and patient narrative during illness. His publications including several papers, books, and edited volumes; he is regarded as a major contributor to the field of psychological anthropology. 

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Sara.Till

The article primarily asserts that how a patient narrates or describes their medical history is deeply rooted in their native culture. As such, physicians must be aware of how an individual's medical experiences can be altered based on this. In turn, physicians must recognize the importance of story-telling and anecdotes when receiving information directly from patients. Narratives project the patient's experience and events through their perspective, granting professionals a glimpse into their thought processes and action patterns.

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erin_tuttle

The author, Byron J. Good, is a Harvard professor in the department of global health and social medicine. He is the director of the International Mental Health Training Program, and has significant experience with field research that has led to many publications.

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erin_tuttle

The article’s main argument is that the narration of an illness is founded in the emotional connection it has to the sufferers life, the place from which they view the illness which includes individual and cultural aspects. Furthermore any lack of factual accuracy is an indicator of the social and cultural environment in which the illness presents itself and is revealing as to how it will be perceived and treated.

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erin_tuttle

The main argument is supported primarily through interviews with many individuals living in Ankara, through which they describe the first presentation of their seizures and in many cases the steps they tool to attempt a cure. Along with the interviews, statistics of the individuals interviewed and their diagnoses is used to provide a reference point to better understand their stories. Finally the article includes an analysis of narratives in a more general sense that can be applied to the narrative of an illness.

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erin_tuttle
  • “… illness narratives - both the corpus of story episodes and the larger life "story" or illness narrative to which they contribute - have elements in common with fiction. They have a plot; succession is ordered as history or event, given configuration.” (164)
  • “The diverse accounts of the illness in these narratives represent alternative plots, a telling of the story in different ways, each implying a different source of efficacy and the possibility of an alternative ending to the story. My point is not that persons having access to a plural medical system do not simply choose among alternative forms of healing but instead draw on all of them” (155)
  • “Predicament, human striving, and an unfolding in time toward a conclusion are thus central to the syntax of human stories, and all of these, as we will see, are important to stories about illness experience.” (145)