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Appalachia

Misria

As a hobby, tabletop role-playing games have a dubious history of appropriation of non-western fantasy tropes as supplemental, and othered. Advanced Dungeons and Dragons' Oriental Adventures (1985), and Al- Qadim (1992) tokenized East Asian, and Middle-Eastern mythology, respectively. Since the onset of Dungeons and Dragons 5th Edition (2014), it's publisher, Wizards of the Coast, makes claims to progress in its depictions of BIPOC communities, by bringing in folks to talk about their own cultures, such as with Journeys through the Radiant Citadel (2022). More fundamentally however, the release of 5th edition and the hobbies resurgence coincided with the proliferation of crowdfunding platform Kickstarter, allowing new voices to populate the hobby space. Adventure games like the all indigenous Coyote and Crow allow for a non-colonial view of North America that presents indigeneity beyond traditionalist tropes, offering advanced technologies like Yutsu Lifts, Second Eyes, and Nisi. The horror game Old Gods of Appalachia offers a marginalized region the chance to celebrate their heritage, and reshape the narrative around Appalachia. The focus on local, and indigenous authorship may offer benefits beyond a sense of authentic representation. When utilized therapeutically, these games may work to address intergenerational trauma, and offer therapeutic insights specifically built to unmoor the legacies ascribed onto these groups by dominant and colonial powers. 

Thomas, Brian J. 2023. "Local Games for Local Trauma." In 4S Paraconference X EiJ: Building a Global Record, curated by Misria Shaik Ali, Kim Fortun, Phillip Baum and Prerna Srigyan. Annual Meeting of the Society of Social Studies of Science. Honolulu, Hawai'i, Nov 8-11.

Louisiana Tumor Registry Research & Critiques

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Lawsuit led by River Region Crime Commission (RRCC) to retrieve LTR information

http://www.la-fcca.org/Opinions/PUB2004/2004-04/2003CA0079.Apr2004.Pub.12.pdf 

Article by Barbara Allen (2005). The problem with epidemiology data in assessing environmental health impacts of toxic sites

https://www.witpress.com/Secure/elibrary/papers/EEH05/EEH05048FU.pdf 

“The registry focuses on cancer incidence, which can be caused by a number of factors, instead of the risk faced by people exposed to emissions from industrial operations. In Terrell's view, that has allowed companies and by the state Department of Environmental Quality to misconstrue its significance.” (Mitchell 2021)

“While scientists will argue that the one-year reporting standard, as set by the state statute, is arbitrary, a five-year reporting timetable is equally arbitrary and less sensitive to changing health patterns. More problematic, however, were the eight large geographic regions. Each region consisted of as many as twelve parishes (a parish is a county in Louisiana) and in the case of the regions that include the parishes of the chemical corridor, industrial parishes are “diluted” by non-industrial parishes, making the determination of elevated cancer rates near chemical plants impossible to decide. The LTR also tends to downplay the rarer cancers, both adult and pediatric, saying the “rates tend to fluctuate because of small numbers...[and] are less reliable and should be cautiously interpreted” [4]. This infuriates the residents and researchers as these rare cancers are of major concern as they may be linked to chemical exposure.”

Response to new health study (March 2021) 

https://www.humanrightsnetwork.org/press/2021/3/22/new-public-health-study-does-little-to-allay-fears-in-cancer-alley 

 http://denka-pe.com/about-us/denkaunhr/ 

Tumor Registry Data Source

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“The Louisiana Tumor Registry (LTR) collects information from the entire state on the incidence of cancer. This information includes the types of cancer (morphology, grade, and behavior), anatomic location, extent of cancer at the time of diagnosis (stage), treatment, and outcomes (survival and mortality).”

 “[A]ny health care facility or provider diagnosing or treating cancer patients shall report each case of cancer to the registry. It also protects health care facilities and providers that disclose confidential data in good faith to the LTR from damages arising from such disclosures.”, see cancer reporting.

Toxic Release Inventory Mission

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Louisiana State University (LSU) School of Public Health

Mission: “To collect and report complete, high-quality, and timely population-based cancer data in Louisiana to support cancer research, control, and prevention.” 

The LTR was formally founded in 1979 under the auspices of Louisiana’s Office of Public Health.

In 1992, the U.S. Congress passed The Cancer Registries Amendment Act making official a national program of cancer registries and monies to fund them.