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margauxf

The Global Burden of Disease (GBD) study that the authors reference and model their call to action around is the worlds' largest scientific effort to quantify trends in health. It is lead by the Institute foe Health Metrics and Evaluation (IHME) at the University of Washington. It began in 1990 as a World Bank-commissioned study and is known for having introduced the disability-adujusted life year (DALY) as a new metric to quantify the burden of disease, injuries, and risk factors (or determinants), and enable comparisons. 

The 1990s were  a turning point for global health structures of governance and knowledge production, which the GBD study exemplifies. Global health experts began increasingly reframing health and healthcare in technical terms like DALY, removing health from public governance in ways that complemented and bolstered structural adjustment policies that were introduced in the 1980s (Janes 2004). As a result of these policies, the size, scope and reach of healthcare delivery and public health services were steadily reduced and downgraded. Anthropologists have been critical of these processes and other perceived failures in global health: the collapse of primary care initiatives fostered at Alma Ata in 1978, the resurgence of selective forms of primary care and vertical public health programs, and the ascendency of the World Bank as the principal health policymaking institution (Janes 2004, 2009).

Janes, Craig R (2004). "Going global in century XXI: medical anthropology and the new primary health care." Human Organization 63, no. 4: 457-471.

Janes, C. R., & Corbett, K. K. (2009). Anthropology and global health. Annual Review of Anthropology, 38, 167–183. doi:10.1146/annurev-anthro-091908-164314

Formosa Monitor Alliance

tschuetz

The Formosa Monitor Alliance (MFA) is run by a coalition of Taiwanese NGOs, including Covenants WatchTaiwan Association for Human RightsEnvironmental Rights Foundation, and Environmental Jurists Association. The MFA has posted news articles, short interviews with local priests and legal analyses, with introductions to relevant laws such as the UN Guiding Principles on Business & Human Rights (UNGPs). 

Self-description of the group on social media:「監督台塑越鋼聯盟」由長期聲援台塑越鋼受害者的團體們組成,旨在為台塑越鋼汙染案的受害者爭取賠償、倡議環境正義,並監督政府及企業履行其人權義務。

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erin_tuttle
Annotation of

The system was built to serve organizations and individuals with humanitarian goals. The system gathers data from report, reviews, and users and compiles it into comprehensible information to help inform decision-making for humanitarian concerns. Portions of the app also focus on education and technical support for field researchers looking to collect large quantities of data.

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erin_tuttle
Annotation of

The system is primarily used by researchers, scholars, and organizations with humanitarian interests. The app also has functions which would attract users that are beginning research and do not have established connections within the field as the app provides a support system.

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erin_tuttle
Annotation of

Twine provides information and software to set up compatible data collection systems that pool information into the larger system, which the app then makes available to its users. The system also includes a publishing and collaboration aspect which allows groups of people from all over the globe to access the same data and report on the findings together.

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erin_tuttle
Annotation of
In response to

Data visualization is primarily determined by the type of data being gathered and the system for data collection being used. The app integrates data in order to both make large quantities of data easily viewable and understood, as well as compare studies with existing data stored on the system.

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erin_tuttle
Annotation of

Users must be registered with the site to access any of the available features, and the registration is free. Once registered, users can immediately begin gathering their own data, analyzing the existing information, publishing reports or reviewing existing publications. The system also has several active data collection locations that are only available to registered users.

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erin_tuttle
Annotation of

The technical aspects of the site are quite complex, as the system has over 1,000 active data sites to compile in addition to the reports and reviews stored. The data collection software is the main function that the software supports as it relieves the users from needing their own data bank to work off of.  The publication functions are also supported by the storage system of the app allowing all users to access all publications.

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erin_tuttle
Annotation of

The system has partners including UNAIDS, a branch of UNISEF, International Medical Corps, Medecins Du Monde, AAHI, and other humanitarian organizations. The support of these groups both financially and with the user community is important to maintain the app as an active site for research and development. The technical aspects of the site also heavily rely on the data storage method, which is not mentioned but would require massive amounts of memory as well as safeguards to prevent data loss on the app servers.