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Engaged scholars as knowledge curators

tschuetz

In her article, Scharenberg (2023) provides methodological reflections on politically engaged or militant social science research. In one section, she discusses the challenge that social movements act as knowledge producers in their own right, often working independent from or outside of academic institutions (2023, 15). This raises questions about what social scientiss add to the mix. I've had similar questions working with and alongside activists in the global anti-plastics movement. Building on Casa-Cortes, Osterweil, and Powell (2013), Scharenberg points out that one response for scholars is to act as "editors" or "curators" of collective knowledge. This argument resonates with the way that I and other collaborators have thought about the engaged ethnographic archive projects:

Activist ethnographers thus become editors of collective knowledges rather than the sole producers of scientific theory. Like a literary editor, the ethnographer works from a position, which does not create knowledges from scratch, but collects the perspectives of others and assembles them with reference to the given context. In this view, objectivity might be achieved, to borrow an expression from Haraway, by assembling “partial views and halting voices” into what she calls a “collective subject position” (1988: 590). Alternatively, we might think of the editor-ethnographer as Berger’s “clerk of the records” (Scheper-Hughes, 1995: 419) who compiles the history of a group of people. Scheper-Hughes understands this position as a kind of witness. (Scharenberg 2023, 16). 

How do research alliances run parallel to activist alliances?

zoefriese

During my thesis project, Tim has served as a collaborator and mentor while he studied data use among activists opposing Formosa Plastics Group (FPG). In addition to connecting me with activists and interview candidates, he also introduced me to a small network of American and Taiwanese students in Taiwan and the United States studying FPG. This community can share resources and knowledge to further our individual studies. Could this academic network serve as a parallel to the transnational activist alliances I am studying? Are the strengths and barriers of research alliances reminiscent of the strengths and barriers of activist alliances?

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Sara_Nesheiwat

The Emergency Medical Treatment and Labor Act is a law requiring that anyone coming into the emergency department will be stabilized and treated no matter what their insurance situation is. In terms of women's health, it is important to note that this means for active labors, medical treatment is necessary and required, no matter the health insurance of the patient. The purpose of this law to prevent certain patients from being turned away in an emergency situation or refused medical treatments if they are unable to pay, putting their health at risk.

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Sara_Nesheiwat

EMTALA was enacted by Congress in 1986 and was part of the Consolidated Omnibus Budget Reconciliation Acts of 1985. Congress saw different cases around America where doctors were refusing medical care to patients who could not make a deposit at the time of their admittance to the ER. An example of this is a patient Eugene Barnes, who in 1985 suffered a stab wound and ultimately ended up dying because 6+ doctors refused to help him without payment or some form of compensation. This made national news and other cases began to come to light, such as at Baptist Hospital in Miami and many other areas. News outlets began to follow these cases and this caught attention of government officials. Shortly after, EMTALA was enacted.

http://www.pitt.edu/~kconover/ftp/emtala-draft.pdf

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Sara_Nesheiwat

This was touched upon a little in a previous question. Many cases of patient dumping were popping up around America. Patients in need  of emergency medical care were being cast aside, ignored and delayed due to their inability to pay. In addition to the stab patient, Eugene Barnes that sparked this law, there were dozens of other cases where patients needed to be transferred to larger hospitals but the hospital refused to take patients without insurance, so the patients died. There were cases of people being asked right before surgery for a deposit, and being unable to pay were discharged with no surgery. There was also a very high rate of dead babies that were arising due to the fact that mothers in labor were being turned away because the patient was uninsured. It was then realized by the government that there were no legal duties for a hospital to treat people who are in emergency situations but cannot pay, only ethical and moral duties, which apparently weren't enough in some cases. This led to the birth of the EMTALA, requiring medical attention to all ED patients as well as transfers if needed to stabilize, including mothers in labor.