Analyze

At the height of the West African Ebola epidemic, West African governments and Mobile Network Operators (MNOs) were barraged with requests from international humanitarian and Western data analytics agencies to provide Call Detail Record data. This data could furnish the large-scale ambitions of data modelling to track and predict contagion. Despite its utility in tracking mobility and, as such, disease, CDR’s use raises many privacy concerns. In addition, embedded within a turn towards datafication, CDR technologies for surveillance embed specific ontologies of the data-focused society they emerge from. There is a false equivalence embedded in the relationship between humans and technology. The predominantly Western idea that one phone equals one person underlines the claim that CDR data accurately tracks distinct user movements, encoding a Western “phone self-subjectivity” (Erikson 2018). However, the refusal by some African actors to hand over sensitive mobile data to international agencies was met with forceful rhetoric of Africa’s moral obligation to comply—to forgo privacy rights in the name of ‘safety.’ The Ebola context reflects an emergent digitization of emergencies in the Global South, which is reshaping the way societies understand and manage emergencies, risk, data, and technology. The big data frenzy has seen a rising demand to test novel methods of epidemic/pandemic surveillance, prediction, and containment in some of the most vulnerable communities. These communities lack the regulatory and infrastructural capacity to mitigate harmful ramifications. With this emergence is a pivot towards 'humanitarian innovation,' where technological advancements and corporate industry collaboration are foregrounded as means to enhance aid delivery. In many ways, these narratives of innovation and scale replicate the language of Silicon Valley’s start-up culture. Surveillance of the poor and disempowered is carried out under the guise and rhetoric of care. In this scenario, market ideals and data technologies (re)construe social good as dependent on the “imposition of certain unfreedoms” as the cost of protection (Magalhaes and Couldry 2021). As big data technologies, they foreground a convergence of market logistics and global networks with existing and already problematic international humanitarian infrastructures (Madianou 2019). These convergences create new power arrangements that further perpetuate an unequal and complex dependency of developing countries on foreign organizations and corporations. Pushback against these data demands showcases competing notions of where risk truly lies. While resistance to data demands was at the state level, community responses to imposed epidemic regulations ranged from non-compliance to riots. These resistances demonstrated how the questions of ‘who and what is a threat?’ or ‘who and what is risky?’ and ‘to whom?’ experience shifting definitions in relation to these technologies as global, national, and community imaginaries are reinforced and reproduced as cultural, political, as well as biological units. 

Source

Akinwumi, Adjua. 2023. "Technological care vs Fugitive care: Exploring Power, Risk, and Resistance in AI and Big Data During the Ebola Epidemic." In 4S Paraconference X EiJ: Building a Global Record, curated by Misria Shaik Ali, Kim Fortun, Phillip Baum and Prerna Srigyan. Annual Meeting of the Society of Social Studies of Science.

In Louisiana, governing elites have long found it more profitable to deny the connections between health outcomes and the structural inequities of an anti-Black petrostate. Their denial is made possible by the existence of data divergence–that is, inconsistencies between data sets or between a data set and the realities it purports to represent (Encyclopedia of Social Measurement 2005). These inconsistencies range from missing or “undone” (i.e. incomplete or ignored) data (Frickel et al. 2007) to the production of different measures (and the selection of different priorities) by institutional silos. Recognition of the need for public health capacities that address the systems and structures impacting health–especially children’s health–has motivated health equity advocates in Louisiana to fill the data gaps through collaborative datawork, that is, the work of making data meaningful across social and scientific communities. In 2022, a coalition of community organizations, academic researchers, and public health workers led by the Louisiana Center for Health Equity (LCHE), a community-based organization created by a registered nurse, worked together to examine the links between adolescent mental health and disciplinary practices in schools. Ensuring their agendas were informed by community priorities led them to incorporate the contributions of adolescents advocating for better access to physical and mental healthcare resources and the abolishment of discriminatory and punitive disciplinary actions in schools. Their collaborative datawork revealed how data gaps around adolescent mental health are a structuring component of schools’ discriminatory and punitive climates–much as gaps in environmental health data benefit polluting industries. They found that existing figures around adolescent mental health are inaccurate, as many youth are unable to receive an official diagnosis owing to lack of healthcare access. LCHE advocates at a house committee meeting in January 2023 reported that students who exhibit behavioral issues rooted in trauma or mental health more often receive punitive disciplinary actions rather than rehabilitative and restorative services. This work generated the support needed to pass legislation to expand public health infrastructure and access to mental health resources. In June 2023, House Bill 353 authorized the allotment of "mental health days" as an excused absence for students; introduced procedures for schools to connect students to medical treatment and services; and required the Louisiana Department of Education to develop and administer a pilot program for implementing mental health screening, among other changes. By mobilizing advocates and scholars from across the social and institutional silos, LCHE’s collaborative datawork tentatively expanded children’s public health infrastructures. 

Fisher, Margaux. 2023. "Collaborative Datawork and Reframing Adolescent Mental Health in the Deep South." In 4S Paraconference X EiJ: Building a Global Record, curated by Misria Shaik Ali, Kim Fortun, Phillip Baum and Prerna Srigyan. Annual Meeting of the Society of Social Studies of Science. Honolulu, Hawai'i, Nov 8-11.

(MNOs) were barraged with requests from international humanitarian and Western data analytics agencies to provide Call Detail Record data. This data could furnish the large-scale ambitions of data modelling to track and predict contagion. Despite its utility in tracking mobility and, as such, disease, CDR’s use raises many privacy concerns. In addition, embedded within a turn towards datafication, CDR technologies for surveillance embed specific ontologies of the data-focused society they emerge from. There is a false equivalence embedded in the relationship between humans and technology. The predominantly Western idea that one phone equals one person underlines the claim that CDR data accurately tracks distinct user movements, encoding a Western “phone self-subjectivity” (Erikson 2018). However, the refusal by some African actors to hand over sensitive mobile data to international agencies was met with forceful rhetoric of Africa’s moral obligation to comply—to forgo privacy rights in the name of ‘safety.’ The Ebola context reflects an emergent digitization of emergencies in the Global South, which is reshaping the way societies understand and manage emergencies, risk, data, and technology. The big data frenzy has seen a rising demand to test novel methods of epidemic/pandemic surveillance, prediction, and containment in some of the most vulnerable communities. These communities lack the regulatory and infrastructural capacity to mitigate harmful ramifications. With this emergence is a pivot towards 'humanitarian innovation,' where technological advancements and corporate industry collaboration are foregrounded as means to enhance aid delivery. In many ways, these narratives of innovation and scale replicate the language of Silicon Valley’s start-up culture. Surveillance of the poor and disempowered is carried out under the guise and rhetoric of care. In this scenario, market ideals and data technologies (re)construe social good as dependent on the “imposition of certain unfreedoms” as the cost of protection (Magalhaes and Couldry 2021). As big data technologies, they foreground a convergence of market logistics and global networks with existing and already problematic international humanitarian infrastructures (Madianou 2019). These convergences create new power arrangements that further perpetuate an unequal and complex dependency of developing countries on foreign organizations and corporations. Pushback against these data demands showcases competing notions of where risk truly lies. While resistance to data demands was at the state level, community responses to imposed epidemic regulations ranged from non-compliance to riots. These resistances demonstrated how the questions of ‘who and what is a threat?’ or ‘who and what is risky?’ and ‘to whom?’ experience shifting definitions in relation to these technologies as global, national, and community imaginaries are reinforced and reproduced as cultural, political, as well as biological units. 

Akinwumi, Adjua. 2023. "Technological care vs Fugitive care: Exploring Power, Risk, and Resistance in AI and Big Data During the Ebola Epidemic." In 4S Paraconference X EiJ: Building a Global Record, curated by Misria Shaik Ali, Kim Fortun, Phillip Baum and Prerna Srigyan. Annual Meeting of the Society of Social Studies of Science. Honolulu, Hawai'i, Nov 8-11.

"So far, however, the idea of setting up a trust fund to allow the Haitian government to eradicate cholera by providing clean water and sanitation has been a deal-killer among international donors."

"'If we do get a final order that the UN's immunity doesn't apply, we would expect the UN to put in clean water and sanitation and compensate the victims,' Concannon says [....] That's the optimistic view."

"That kind of political morass is one big reason - though by no means the only one - why the billions in relief and recovery aid haven't been enough to rescue Haiti from the disasters that fate kept flinging its way."

""USAID has spent about $1.5 billion since the earthquake,' Johnston told Goats & Soda. 'Less than a penny of every dollar goes directly to a Haitian organization.'"

This quote shows the extreme difference in total money donated compared to the money that is being used to help Haiti directly. I was mentioned that their government is hard to trust, so outside companies tend to hold the money, but that means that they can decide how they want to spend it.

"The U.N. and its agents are "absolutely immune from suit in this Court," Oetken ruled."

This quote shows the irony of the situation, by using the word "immune" it brings light to the fact that the UN's actions had major impacts on Haiti, from with the people of Haiti are very much not "immune", as cholera affects so much of the population.

There arent any references along with this document, but the author presumably researched where dontaions go, conducted interviews with the volunteers that travel to help out on the island, as well as investigating how the rebuild process is going in comparison to the state of the island before the disaster.

The main point is the lack of justice for Haiti in this rebuild process. They got huge amounts of dontions from all over the world in hopes of rebuilding the country to be better than it was. Insead, the vast majority of the money is not being spent in the right ways, and much of the spending is not being done in the most economical ways. The ways that the companies are going about rebuilding is much more wasteful than it has to be, thus using more of the money and preventing it from going as far as it could.  Additionally, the UN has created a cholera epidemic in Haiti and is not being held accountable for cleaning it up.

 Institute for Justice and Democracy in Haiti - Boston nonprofit - human rights

NPR - National Public Radio - news source

 President Michel Martelly - Haitian president

Nepalese soldiers - from the UN - brought Cholera

United Nations

Secretary­General Ban Ki­moon - UN

Haitian Ministries of Health and Environment

Center for Economic Policy and Research - Washington

U.S. District Court Judge J. Paul Oetken

The article dicusses how the UN has caused major health issues but is not being held accountable by the court's decision, so that is a clear injustice for Haiti. Additionally, the only money that goes directly to Haitians to spend in the recovery has been spent on helping increase children's immunizations rates and increase HIV medical treatment, so they have shown some ability to help themselves when given the resources.

"... Haiti is a long, long way from realizing the bullish goal of 'building back better.'''

"... hope for eradication [of cholera] rests on ... the U.N. to come up with the money."