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Residents of Love Canal, in the Niagara Falls region of Western New York, were alerted to signs of a toxic waste crisis involving the lethal chemical byproduct dioxin in the late 1970s. Residents learned about the crisis through news media, community activism and research, and their own visceral experiences – they could smell noxious fumes, noticed black sludge seeping into their basements, and saw children falling ill. Activists and academics carried out community-based research to survey the area in an effort to understand the extent of the hazard and its effects – data that they saw as missing, at the time – in turn generating evidence of changes in health and pregnancy abnormalities. In doing so, members of the community aimed to hold corporate and government stakeholders accountable to evacuate residents, organize remediation, and strengthen scientific studies and interventions to care for residents. Regional health authorities, however, dismissed community-based studies as “useless housewife data”. Activists responded by scrutinizing government and scientific studies, critiquing a lack of ecological validity and trustworthiness. Residents and community groups’ advocacy contributed to their exercise of epistemic authority, the creation of archival records and initiatives tracking the crisis over the last five decades, and wider public attention to Love Canal and other sites like it.

Image Description and Source: "Map showing distribution of symptoms believed to be caused by Love Canal pollutants," Digital Collections - University at Buffalo Libraries, May 1982.

Shankar, Saguna. 2023. "What's the Use of Data? Epistemic Authority and Environmental Injustice at Love Canal." In 4S Paraconference X EiJ: Building a Global Record, curated by Misria Shaik Ali. Kim Fortun, Phillio Baum and Prerna Srigyvan. Annual Meeting of the Society for Social Studies of Science. Honolulu, Hawaiti, Nov 8-11.

The authors offer a review of themes within occupational health and environmental public health surveillance over the past decade. In reviewing the history of public health surveillance, the authors highlight key acts of Congress in the 1970s that have made the development of “modern” occupational health and environmental health surveillance possible—but which also failed to develop into a cohesive and well-connected data management systems across federal agencies. Separate agencies were tasked with different data collection, management and intervention tasks in ways that fragmented the surveillance system to the point of ineffectiveness.

The authors argue that effective surveillance for occupational and environmental health demands development of a clear purpose for collecting data and having the data available to make meaningful analysis possible. They turn to the CDC’s childhood lead prevention program to demonstrate these points.

The policy is a program funded by the EPA called C.A.R.E. (Community Action for a Renewed Environment). The aim of this program is to build the public voice in environmental matters, and to give access to different sources of information from the community.