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Citizen science as a contested culturally specific term

lclplanche

This text argues that the umbrella term citizen science has come to describe a variety of organizations and structures that function in a very different way. Not only does the notion of citizen science cover a wide variety of situations, but the term itself makes references to different types of organizations and is not neutral. Japan had forms of "citizen science" which pre-existed the introduction of the English term, as heirs to the development of more engaged scientific practices by politically inclined scientists in the 1970s.

The tensions within the use of the term citizen science and its diverse embodiments take the form of the following: basically, the concept of citizen science in Japan is mostly used in the context of top-down participatory approaches. The organizations that emerged after the Fukushima disaster are much more varied than this and exist within a framework that had been previously developed in Japan. This framework included visions of participatory and democratic science making by citizens, for citizens, and of citizens. They are mostly local organizations that are sometimes but not always affiliated to a network. Some of them cooperate with more formal institutions, while others steer clear of any collaboration with formal science or governments, partly because there is a lot of distrust towards these institutions in Japan, especially since the Fukushima accident.

One of the pitfalls of the reputation that citizen science projects have in Japan is that they are associated with the anti-nuclear movement and are therefore associated with the far left. This causes a need for distantiation from any political association, which some of the organizations studied use.

A complex set of data to understand and use.

lclplanche

One of the reasons for the specific nature of data and knowledge management in this context is the economic necessity and attractiveness of stable, high paying employment. In terms of the beginning of the accumulation of local knowledge regarding the risks to which the workers and the neighbors were being exposed to, this clearly played a role. For fear of losing their good paying jobs, and due to the military nature of their occupation, workers never told anything about their jobs to their families, or didn't ask questions that could have led to uncomfortable answers. This dynamic continued later, as we can see by the testimony of the worker who worked on the clean-up of the Weldon Springs site. The Priest also notes that in the neighborhood, people were wary of information leaking, as it might depreciate their property values.

Something else which we can observe is that, on top of the economic necessity for preserving one's job, there is also a sentiment of pride in doing one's work properly. A worker recalls that the relationship that the workers had to having to wear blue (and reduce your actions because you were contaminated) was that it was just part the job, and that they had a job to do. After the Weldon springs plant closed, there was a liberation of voices, and it was easier to report health concerns. The sentiment of pride in doing ones work properly is completed by a sentiment of patriotism. The same worker, Mr Schneider, said: "We have to believe what our government tells us, what the heck, uh. Best country in the world, I still think it is." Another example of the relationship between the job and the risk is the testimony of the clean-up worker who said that they shut of their Geiger counters, because they were "just going nuts". Here we can see that when the risk is too high, it becomes less visible, less understandable, because it is inescapable. Another reason for the difficulty of accumulating and sharing information, at least until the 1990s, is the priority of beating the communists. The discourse of emergency and national priority is not conducive to asking questions (as we can observe today in different ways).

The closing of the Weldon Springs plant coincided with the rise of environmental concerns in the USA and the change in environmental perspective had an impact on the categorization of places such as the Weldon Springs one, which became a Superfund site. This required a change in management at the department of energy because they started needing to have conversations and interactions with the public. This did not solve all the knowledge management problems however, because the measures put in place to deal with the injustices were insufficient compared to the nature of the events that had unfolded.

This is for multiple reasons. The first the nature of the risk means that the production of knowledge and regulations was complicated by a lack of understanding of the different medical pathways, conditions, and interactions which lead to the development of health problems. The number of people affected is also quite small, so the statistics may not appear to be significant. The second is the complexity of the accumulation of data in order to gain reparation and recognition, something which led to a movement to make the process more collective, in order to support the data finding and management process and make the knowledge of the administrative procedures consolidated. Finally, there were instances where the records of employee exposure were falsified, which meant that the access to this information was impossible.

Acceptable losses

lclplanche

One question that is brought up in the documentary which compelled me is the quesiton of knowing how to mark the borders of acceptable risk. While at the beginning of the nuclear production operations, the question is not raised so much, it comes into play later, when the environmental movements have influenced the governance of the USA enough that the clean-up becomes a question answerable through policy. It is at that point that multiple tensions arise. First, there is the tension between the perception of risk that the workers who worked in the factories had and the outwards sign of protection that the workers doing the clean up wear. And second, once risk is acknowledged, a tension arises related to the extent of risk, and the areas which need to be protected.  As the priest recalls,  people visiting the clean-up site, were in laymen's clothing on one side of the fence, and on the other side of the fence, people were in moon suits. Similarly, a clean-up worker recalls that the houses where they stayed during their time at work were just on the other side of the fence from the clean up site where they had to wear protective gear.

Another tension which intrigued me in this documentary is between the representation of exposed workers as heroes and as victims. This is something which arises of another context which is mentioned in this documentary which is the military, and some of the exposed workers are veterans. Faced with life altering situations, it is without a doubt useful to have a construction which permits the making of meaning and the perception of oneself as honorable, but it should be investigated what the impact of patriotism and loyalty to country is on perception of risk and injustice. 

The last question which intrigued me in this documentary is that of the construction of the deterrent/protective structure on the nuclear waste site. The priest raises an interesting point when he asks whether the best use of the money spent was in constructing this structure that would, according to him, be attractive to children, instead of providing financial support and health care to the people affected by the radiation. It really made me question the value of creating an attractive memorial like structure, and the discourse it conveys on the nature of the events which unfolded there. And of course, the classic question of the management of essential message bearing structures that wil long outlive us.

The all encompassing labor of nuclear weapons production

lclplanche

The original labor of this quotidian Anthropocene is the labor of weapon production. The economy of war produced a situation where workers' security or the environment was absolutely not the main priority. As someone said in the documentary, there was no reason for workers not to be protected as early as 1942. After the war, work had to be put in to construct more permanent buildings which would improve worker safety and allow better control of the uranium purification process. Another form of labor was put in to structure the practices of control of worker's contamination.

Another labor, which was provoked by the anthropocenics in this situation is that of the medical professionals who surrounded and treated the workers. For example, Mr Schneider's first cancer was discovered by his chiropractor.

Another provoked labor is the activist labor of the workers, children and activist who are impacted by the health risks of working in those factories. The paperwork and administrative labor required to obtain compensation for health impacts is very high, and requires expert help, organizing in a collective was another labor which permitted the previous ones, and allowed for the pooling of ressources and knowledge to properly defend the rights of workers. A labor which is related to this one is the labor of workers' unions to fight for accurate representation of the risks entailed by the employment of their members and to support the protection of workers.

Related to the labor within the factories themselves is the labor of clean-ups, which contained some of the same risks, with more protection and less exposure time than the original problem producing labor. There is also the labor of knowledge production and risk assessment by individual workers who were coerced in putting their livelihoods above their health. One worker says he had severe nosebleeds on the job and was warned/threatened by his supervisor that he would be fired if he told someone about it.

The final labor that I noticed being covered in this documentary is the labor of everyday clean up. Some people recall cleaning radioactive dust off of their laundry that they set to dry outside, and someone else recalls her brother cleaning the dust off his car in the morning.

Email exchanges between Roberto and Vivian

vychoi
Annotation of

Roberto:

Perhaps this piece by Paul Farmer et al. on the compounding of the cholera epidemic and earthquake in Haiti gives us some food for thought? Thinking about transnational STS and critical disaster studies, it may be worthwhile to discuss how COVID is compounded in places that are still recovering from or experiencing other kinds of disasters. 

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3104956/Vivian: I have been interested (not surprisingly) of how the pandemic has been framed, in particular, as a war, an "invisible enemy," something that requires some external or bio-technical solution or shifts blame -- in disasters, of course, we know this happens (e.g., framing disasters as merely "natural" ).  Celia Lowe's article on the pandemic that never quite was (H5N1) I like -- asking questions like for whom is biosecurity? And illustrating how geopolitics plays in anticipatory pandemic responses.  I have attached that piece.  There is another piece that I have been interested in: The State, Sewers, and Security: How Does the Egyptian State Reframe Environmental Disasters as Terrorist Threats? by Mohameed Rafi Arafin, in AAAG.https://doi.org/10.1080/24694452.2018.1497474. The other aspect I have been trying to think through, which maybe already came up in the anti-blackness/rebellious mourning call: I have been thinking a lot about how George Floyd tested positive for COVID-19, how this is a compounded disaster: antiblackness, institutionalized racism, and the pandemic. I don't think that anyone would argue against the notion that the pandemic is a disaster, but what about it is disaster?  I like thinking about disaster as capaciously as possible.  I have started reading Christina Sharpe's "In the Wake," in which she talks about slavery, black subjection, colonialism, terror as disaster. Perhaps this would be a timely piece of work to add to disaster literature? The first chapter is available on Duke UP's website: https://www.dukeupress.edu/Assets/PubMaterials/978-0-8223-6294-4_601.pdfRoberto:I think another piece that might go well with this group of readings is Lakoff and Collier's "Vital Systems Security." I am pasting a link to it below. Andrew Lakoff also did a talk for the Italian Society for Applied Anthropology on the pandemic recently. The talk is up on Youtube. I am also pasting a link to it.https://www.researchgate.net/publication/273911201_Vital_Systems_Security_Reflexive_Biopolitics_and_the_Government_of_Emergencyhttps://www.youtube.com/watch?v=zhkublz7vJw&fbclid=IwAR2k9x_oNu9YR_YDuI98oSzn5w7PoTjPa0JMI7MBkuwKxYJarSCXD7MMvewAlso, I have recently co-authored a piece that will come out in Human Organization about disaster anthropology and COVID 19. The contributors to that article included Virginia Garcia Acosta and AJ Faas. Although the piece is not available for circulation yet, here are some questions that came up during the drafting of the article: 
  1. Disaster anthropologists have long defined disasters as diachronic processes that enhance the socially disruptive and materially destructive capacities of geophysical phenomena, technological "accidents," and epidemics. One question to ask however, is whether we must give special consideration to the way viruses manifest agency in comparison to say hurricanes, earthquakes, or toxins or radioactivity released during technological accidents. Do we draw analytical blindsides by reducing pandemics to simply another kind of disaster? What special methodological and theoretical considerations must we keep in mind when examining COVID 19 from a disaster anthropology perspective? 
  2. Following up on the question above. In many instances, governmental, non-governmental, and inter-governmental organizations engage in a division of labor that separates responsibility for disaster management from pandemic management while, in other instances, an organization may be charged with managing both. When dealing with COVID as a transnational phenomenon, what agencies are involved in its mitigation and how do their legal and policy jurisdictions factor in to their ability to handle the pandemic? 

Roberto:

Also, just thinking about the general historicity of the branch of disaster anthropology I was trained in (which we could say is the Susanna Hoffman and Anthony Oliver-Smith branch of the field that is heavily invested in political ecology and vulnerability theory), a lot of folks see O'Keefe et al's 1976 article as foundational. What is interesting here is that these critical geographers used a comparative approach at the level of the nation as the ground for making their core argument. So there may be some room for discussion there in terms of the Disasters STS group wanting to transcend national level data. Here's the citation for that article: O’Keefe P,Westgate K,Wisner B. 1976. Taking the naturalness out of natural disasters. Nature 260:566–67Oliver-Smith, who is credited with bringing political ecology and disaster anthropology into conversation also credits the work of a Latin American and British network of geographers, anthropologists, historians, and sociologists called La Red with creating the formulation of Marxist analysis that became foundational of the vulnerability shcool of thought. Andrew Maskrey and a group of Latin American researchers including Virginia Garcia Acosta, Gustavo Wilches Chaux, and Jesus Manuel Macias, among others collaborated on this volume, which precedes Oliver-Smith's and Hoffman's The Angry Earth and deserves a good bit of the credit for what became the American flavor of political ecology disaster studies in the US: Maskrey A, ed. 1993. Los Desastres No Son Naturales. Bogot´a, Colomb.: La RED, Intermed. Technol. Dev.
GroupFinally, getting back to Lakoff and Collier, I think Ulrich Beck's Risk Society is particularly relevant here. Beck's concern with the ways toxicity and radioactivity moved across national borders (a transnational risk) and the kinds of social movements he hoped would emerge to counteract them may be worth discussing in the COVID 19 context.

Vivian:

VSS and Reflexive Biopolitics goes well with Lowe's piece, because she makes the very good point that the infrastructures that Lakoff/Collier discuss that are at the core of VSS/biopolitical governance are quite different across contexts (and as she goes on to show, in Indonesia).  Beck is interesting, certainly, and is part of a general group of sociologists (including Giddens, etc) that discuss risk/globalization.   

Thank you, Roberto, for the history/roots of Oliver-Smith/Hoffman's work. As an aside, there is always one part of Oliver-Smith's "Theorizing Disasters" from Catastrophe and Culture that I never really understood, which is why he excluded terrorist attacks and war from his pretty inclusive list of disasters. There is no discussion or footnote or anything that I could find!  And, obviously, Kim, your work on Bhopal as a transnational disaster is so helpful too.Roberto: As for your question about why war and terrorist attacks were not included in the OS branch of disaster anthropology, I've heard or read a few comments on the matter, but I can't quite recall where at the moment. The justification runs along the line that there are different "root causes" and different institutions as well as different problematics involved. For example, political conflict can result in refugee movements, which involve a different collections of agencies as well as international accords like UNHCR. Granted, we can make the case that disasters also drive transnational migration, but, if I am not mistaken, the UN Convention does not recognize them as refugees. Maybe that's changed since my refugee studies days back in the 90s. Also, disasters and pandemics are the result of human practices that enhance the socially destructive and materially destructive capacities of geophysical phenomena and viruses, while political conflict and war are seen as the result of political intentionalities. Now this is me badly paraphrasing the justifications which, I agree, may not be completely watertight. Some anthroplogists have explored the relationships between disaster and political conflict, but usually the studies focus on how disasters push a particular historical political ecology over the edge into all out conflict. Sahlins' Stone Age Economics, for example, makes a connection between cyclones, famine, and eventual political turmoil, but the latter is seen as an effect and not as an ontological coeval. Same goes for the Guatemalan Civil War after the 1976 earthquake and there's quite a few other disaster ethnogrpahies that look at social change in the aftermath of a disaster. So there is literature that connects the two but, in some brands of disaster anthropology, war and disaster remain ontologically different. I guess it would make for a good conversation as to the blindsides such a differentiation creates and whether there are useful reasons to maintain it. Something that comes to mind in this case is Mitchell's Can the Mosquito Speak, where he looks at malaria epidemics and WWII in Egypt as intimately entangled, and we could certainly say the same about war and disaster in many cases. Also, a little footnote that may not be relevant: When Oliver-Smith was at the University of Florida, he worked closely with Art Hansen, who specialized in refugee movements. Perhaps some of this differentiation is the result of an academic division of labor from those days? That might be pushing it. I do think in general, a lot of the disaster anthropologists from this branch of anthropology would defend the differentiation they make on the grounds I listed above which, again, may have faults worth discussing. Finally, it is worth noting that many disaster anthropologists do recognize the history of militarized disaster response in the US, which goes back to Collier and Lakoff's Vital Systems Security, but it seems they separate terrorism, war, and disasters because of their different "root causes."PS - I guess the issue of war, terrorist attacks, and disasters being ontologically coeval gets to the heart of what kind of anthropology we want to do. One of the issues I have with political ecology and vulenrability theory is that they remain soemwhat unreflexive about their own modern epistemological vantagepoint. So, to a great extent, these kinds of disaster anthropology begin with certain predetermined ontologies as an analytical point of departure. I guess we could think of other kinds of anthropology where ontologies are not analytically predetermined, but they constitution is explored over the course of the ethnogrpahy like Mol does in Multiple Ontologies. Someone who comes to mind is Mara Benadusi, who has an article in Economic Anthropology about oil refinery development as disaster. The case here is that, while petrochemical development may not fit certain narrowly defined ideas about what a disaster is, what matters is that her interlocutors mobilize disaster discourse to speak about its toxic effects.Vivian:Yes, I like thinking of the disaster as being multiple (pace Mol).  In my own research in Sri Lanka, the government has, with the UN funding, developed their Disaster Management Act in 2005, following the Indian Ocean tsunami.  Specifically, the Act and much of the work undertaken by the post-tsunami established Disaster Management Centre focused on mainstreaming of "Disaster Risk Reduction" (preparedness rather than response -- this is also the management orientation that Lakoff/Collier discuss in the context of the US).  In Sri Lanka, everything from tsunamis and earthquakes, to fires and civil strife and terrorist attackes are all consider "risks" under the purview of the Disaster Management Centre.  The former Minister of Disaster Management would regularly refer to Sri Lanka's decades-long civil war as a "human-made" disaster, when speaking about mainstreaming Disaster Risk Reduction in the country. In light of my own experience, I always struggled with OS's exclusion of terrorist attacks and war!

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wolmad

The narrative is sustained through emotional stories of end of life care from both the physician and patient perspectives performed by both Dr. Atul Gawande and by other healthcare professionals such as oncologists, palliative care experts, other surgeons. The scientific background of end of life care isn't really discussed in detail, as this film focuses more on the social and emotional aspects of this topic.

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wolmad

This article utilizes excerpts from interviews to illustrate the story narrative of an illness, showing how emotion and values are reflected in the creation of a "plot" of the narrative, and uses statistics and broader research to analize these stories from a broader, more societal perspective. 

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wolmad

This discusses the rape and gender based violance in the context of humanitarian response. It looks at how rape and gender based violance is seen by the humanitarian communty and the complexities of determining how it should be treated, if at all. The article discusses the factors leading to gender based violance and the different approaches that the humanitarian community could pursue it with, finding the pros and cons of each, citing the need to maintain neutrality, be apolitical, and be equal in care, treatment, and aid for all groups affected.