Citizen science and stakeholders involvement
Metztli hernandezCITIZEN SCIENCE
Epistemic negotiation
Stakeholders (indigenous groups, activist, scientist, scholars, etc)
CITIZEN SCIENCE
Epistemic negotiation
Stakeholders (indigenous groups, activist, scientist, scholars, etc)
Data infrastructure supporting recognition of the anthropocenic air pollution in the context of the 6th Naphtha plants is the collection of health related and biological data, as it could be one possibility to sue. The data collected in scientific studies mentioned in the film were the concentration of a certain metabolite (produced when being exposed to VCM) in the bodies of children visiting the schools nearby and the incidence of cancer in the surrounding area. Doing medical and epidemiological research on these topics could help to set regulations. And - and that's maybe even more important to the people affected - if you can prove that you got a disease from being near the factory, you might be able to sue.
This image reminds me of how mutual aid and communities keep each other fed, and safe, and how local practices are actually best practices. My own research, although not immediatley related to the specific public health concern of COVID, will focus on Indigenous food soverignty, particularly the right and autonomy to ferment and distribute alcohol (紅糯米酒) within the Amis community, and their current fight with the local health department on declaring whether or not their alcohol is "safe" for public consumption and distribution.
I think what is very striking in this text, is the author puts her perspective of the disability studies and uses it to draw lines from the disability studies, more particular the queer black disability studies, to the environmental justice movement. From reading the text, I think one can see, that Julia Belser is very involved in disability studies and the field of critical medicine/ psychology. The way she describes that we should turn away from always seeking to get (back) the pure nature, the healthy environment, the "healthy" body, she reminded me of the general idea of overcoming pure categories (for example Latour etc.) - and dualisms. Additionally, I think one could locate her in the area of inequality studies and the field analyzing structural violence.
"Within this latter understanding of citizen social science, listening to the field becomes an important tool to accumulate not only concerns and issues expressed by citizens (Morris-Suzuki, 2014), but also to adopt and borrow terminologies used by citizens to generate a more “socially robust science” (Bonhoure et al. 2019, Nowotny, 2003)." (p. 6)
Concept of citizen science (top-down/ bottom-up), and also dealing with the question of the politicalness of data, I think that's quite interesting. As one of the members says: "We agreed that if we just measure accurately, the truth will shine through. If we start saying that we are against [the government], people will label us as against [the government]. So it becomes more difficult for everyone to join us. [...]" (p. 4) - so data is configured as something apolitical, neutral here, and so the citizen science groups also can be like this. I think this is interesting, that they have this concept of data.
I think the concept of citizen science and participation is interesting when we look at the participatory project of the Höchst Industriepark for the residents: They are invited to discuss about impacts of the Industriepark on the districts around. But in this context, the citizens they don't acquire data, but are invited to get informed about what Höchst Industriepark wants to do, what their plans are. I think the aspect of participation is a little hypocritical here: For me it seems to be a measure of making residents feel like they can participate, but there is no decision-making power with them.