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Health data as evidence

ATroitzsch
Annotation of

Data infrastructure supporting recognition of the anthropocenic air pollution in the context of the 6th Naphtha plants is the collection of health related and biological data, as it could be one possibility to sue. The data collected in scientific studies mentioned in the film were the concentration of a certain metabolite (produced when being exposed to VCM) in the bodies of children visiting the schools nearby and the incidence of cancer in the surrounding area. Doing medical and epidemiological research on these topics could help to set regulations. And - and that's maybe even more important to the people affected - if you can prove that you got a disease from being near the factory, you might be able to sue.

Lead Hazard

karishmakkhanal

WHAT (& WHAT FOR): Lead is a metal often found in pipes, and in old paint (before it was banned in paint in the late 1970s). Before 1996, lead also found in vehicle fuel resulting in  soil contamination in many communities from both paint dust and vehicle pollution. 

HEALTH IMPACT: Lead is a neurotoxin and is known to have no safe blood lead level in children. 

Has been linked to:

  1. Brain swelling, anemia, seizures, renal failure, reduced IQ, and ADHD

  2. Damages brain development in children

  3. Connected to behavioral problems like aggression and bullying, and internalizing problems such as depression and anxiety 

LOCAL IMPACT: Recent research in Santa Ana has shown that there is a disproportionately impact of solid lead contamination crisis on lower income, people of color communities. 

POSSIBLE RESPONSES: There are many ways to respond to lead contamination:

  1. Providing special health care for children with high blood lead levels, and investigating possible sources of lead exposure in homes, daycares and school, playground, etc.

  2. Implement strict housing policies where landlord and city housing officials are required to have lead inspections of homes for lead paint hazards (especially in low income, people of color communities)

  3. Requiring a minimum reduction standard for lead paint in older homes 

  4. Requiring blood lead level test as part of the routine check up for children (extremely important for children in low-income housing)

PFAS Hazard

karishmakkhanal

WHAT (& WHAT FOR): PFOAS are a group of large manufactured chemicals that are widely used in various everyday items. Often used in waterproof items and nonstick pans among other products.  They are used in a number of industrial processes. Improper disposal of the chemicals from industrial manufacturing has resulted in PFAS seeping down into the ground and into the water supply.  These chemicals are known to be forever chemicals that  do not degrade in the environment. 

 

HEALTH IMPACT: PFAS are known to be forever chemicals that cause weakened immune systems, increased cholesterol level, increased risk of testicular and kidney cancers, and decreased vaccine response in children. EPA has concluded that exposure to PFOA and PFOS over certain levels may result in developmental effects to fetuses during pregnancy (low birth weight) or breastfed infants (accelerated puberty, skeletal variations). 

 

LOCAL IMPACT: Both the State Water Board and the Santa Ana Water Board have initiated investigations. The PFAS investigation done by State of California Regional Water Quality Control Board reveals results that show PFAS concentrations above the current Notification Levels for drinking water. Santa Ana Water Board staff is currently working to identify potential sources of the contamination in the groundwater. 

 

POSSIBLE RESPONSES: 

  1. Conduct wellhead treatment to treat PFAS impacted drinking water to levels below state-established PFOA/PFOS notification levels.

  2.  Obtain a more comprehensive monitoring information on potential sources of PFAS

  3. Set Effluent guidelines, develop analytical methods and issue water quality criteria for PFAS

Lead Hazard

karishmakkhanal
Annotation of

WHAT (& WHAT FOR): Lead is a metal often found in pipes, and in old paint (before it was banned in paint in the late 1970s). Before 1996, lead also found in vehicle fuel resulting in  soil contamination in many communities from both paint dust and vehicle pollution. 

HEALTH IMPACT: Lead is a neurotoxin and is known to have no safe blood lead level in children. 

Has been linked to:

  1. Brain swelling, anemia, seizures, renal failure, reduced IQ, and ADHD

  2. Damages brain development in children

  3. Connected to behavioral problems like aggression and bullying, and internalizing problems such as depression and anxiety 

LOCAL IMPACT: Recent research in Santa Ana has shown that there is a disproportionately impact of solid lead contamination crisis on lower income, people of color communities. 

POSSIBLE RESPONSES: There are many ways to respond to lead contamination:

  1. Providing special health care for children with high blood lead levels, and investigating possible sources of lead exposure in homes, daycares and school, playground, etc.

  2. Implement strict housing policies where landlord and city housing officials are required to have lead inspections of homes for lead paint hazards (especially in low income, people of color communities)

  3. Requiring a minimum reduction standard for lead paint in older homes 

  4. Requiring blood lead level test as part of the routine check up for children (extremely important for children in low-income housing)

The intersection of disability studies and environmental justice movement

ATroitzsch

I think what is very striking in this text, is the author puts her perspective of the disability studies and uses it to draw lines from the disability studies, more particular the queer black disability studies, to the environmental justice movement. From reading the text, I think one can see, that Julia Belser is very involved in disability studies and the field of critical medicine/ psychology. The way she describes that we should turn away from always seeking to get (back) the pure nature, the healthy environment, the "healthy" body, she reminded me of the general idea of overcoming pure categories (for example Latour etc.) - and dualisms. Additionally, I think one could locate her in the area of inequality studies and the field analyzing structural violence.

Listen to the field

ATroitzsch

"Within this latter understanding of citizen social science, listening to the field becomes an important tool to accumulate not only concerns and issues expressed by citizens (Morris-Suzuki, 2014), but also to adopt and borrow terminologies used by citizens to generate a more “socially robust science” (Bonhoure et al. 2019, Nowotny, 2003)." (p. 6)

Neutral data?

ATroitzsch

Concept of citizen science (top-down/ bottom-up), and also dealing with the question of the politicalness of data, I think that's quite interesting. As one of the members says: "We agreed that if we just measure accurately, the truth will shine through. If we start saying that we are against [the government], people will label us as against [the government]. So it becomes more difficult for everyone to join us. [...]" (p. 4) - so data is configured as something apolitical, neutral here, and so the citizen science groups also can be like this. I think this is interesting, that they have this concept of data.