Analyze

What I find really noteworthy in this text is how Julia Watts Belser takes the poem by Leah Lakshmi Piepzna-Samarasinha and includes it into a scientific text. In this way, she not only allows an affected person to have her say, the poem also leaves the reader with a very striking image of the connection between the river and the body, in multiple ways, as well as the connection between enviromental harm and disability.

The text was published in 2020 (Vol. 40, No. 4) by The Ohio State University Libraries in their Journal Disability Studies Quarterly (DSQ). It is, as you can read on their Homepage "a multidisciplinary and international journal of interest to social scientists, scholars in the humanities and arts, disability rights advocates, and others concerned with the issues of people with disabilities. It represents the full range of methods, epistemologies, perspectives, and content that the field of disability studies embraces. DSQ is committed to developing theoretical and practical knowledge about disability and to promoting the full and equal participation of persons with disabilities in society."

The author connects disability theories and activism with environmental justice, this approach allows her to show how disability is related to and through environmental harm, she shows how diagnoses are used politically in these cases, and looks critically at how these processes determine how, when and in what favor human and environmental harm is taken into account. The writing is shaped by the consequences of the Anthropocene like environmental harm linked to health isusses, especially affected are communities of color and poor communities in the United States, here pre-existing patters of structural inequality, already known from climate change come into play,  this communities are the most affected and the least responsible.

The text left me with a question that I actually often find frustrating in the process of research. On page 6, the authors take up the criticism of a Fukushima resident who says: “[W]hat you call research does not give benefits to local people” (Miyamoto and Ankei, 2008, cited in Ankei, 2013, p.24). The authors here suggest adopting or borrowing terms from the field that are used by citizens to create a more “socially robust science” (Bonhoure et al. 2019, Nowotny, 2003). From the authors' point of view, this can be achieved above all by paying closer and careful attention to the language of citizen organizations and the contexts these groups work in. After further elaboration, the authors call for citizen science terms and concepts developed by, for and with citizens to better reflect the values, priorities, and stakes of its main agents and of all concerned parties. But I am not sure that this approach alone would be sufficient to adequately address such expressed criticism. Perhaps one should ask about the expectations of people one is researching with/about in order to enter into a conversation and to be able to understand this criticism. Perhaps the authors will address this point again in further publications. I think to ask oneself how to deal with this criticism methodically and ethically could also be very fruitful for empirical research in general.

This text argues that the umbrella term citizen science has come to describe a variety of organizations and structures that function in a very different way. Not only does the notion of citizen science cover a wide variety of situations, but the term itself makes references to different types of organizations and is not neutral. Japan had forms of "citizen science" which pre-existed the introduction of the English term, as heirs to the development of more engaged scientific practices by politically inclined scientists in the 1970s.

The tensions within the use of the term citizen science and its diverse embodiments take the form of the following: basically, the concept of citizen science in Japan is mostly used in the context of top-down participatory approaches. The organizations that emerged after the Fukushima disaster are much more varied than this and exist within a framework that had been previously developed in Japan. This framework included visions of participatory and democratic science making by citizens, for citizens, and of citizens. They are mostly local organizations that are sometimes but not always affiliated to a network. Some of them cooperate with more formal institutions, while others steer clear of any collaboration with formal science or governments, partly because there is a lot of distrust towards these institutions in Japan, especially since the Fukushima accident.

One of the pitfalls of the reputation that citizen science projects have in Japan is that they are associated with the anti-nuclear movement and are therefore associated with the far left. This causes a need for distantiation from any political association, which some of the organizations studied use.

One of the reasons for the specific nature of data and knowledge management in this context is the economic necessity and attractiveness of stable, high paying employment. In terms of the beginning of the accumulation of local knowledge regarding the risks to which the workers and the neighbors were being exposed to, this clearly played a role. For fear of losing their good paying jobs, and due to the military nature of their occupation, workers never told anything about their jobs to their families, or didn't ask questions that could have led to uncomfortable answers. This dynamic continued later, as we can see by the testimony of the worker who worked on the clean-up of the Weldon Springs site. The Priest also notes that in the neighborhood, people were wary of information leaking, as it might depreciate their property values.

Something else which we can observe is that, on top of the economic necessity for preserving one's job, there is also a sentiment of pride in doing one's work properly. A worker recalls that the relationship that the workers had to having to wear blue (and reduce your actions because you were contaminated) was that it was just part the job, and that they had a job to do. After the Weldon springs plant closed, there was a liberation of voices, and it was easier to report health concerns. The sentiment of pride in doing ones work properly is completed by a sentiment of patriotism. The same worker, Mr Schneider, said: "We have to believe what our government tells us, what the heck, uh. Best country in the world, I still think it is." Another example of the relationship between the job and the risk is the testimony of the clean-up worker who said that they shut of their Geiger counters, because they were "just going nuts". Here we can see that when the risk is too high, it becomes less visible, less understandable, because it is inescapable. Another reason for the difficulty of accumulating and sharing information, at least until the 1990s, is the priority of beating the communists. The discourse of emergency and national priority is not conducive to asking questions (as we can observe today in different ways).

The closing of the Weldon Springs plant coincided with the rise of environmental concerns in the USA and the change in environmental perspective had an impact on the categorization of places such as the Weldon Springs one, which became a Superfund site. This required a change in management at the department of energy because they started needing to have conversations and interactions with the public. This did not solve all the knowledge management problems however, because the measures put in place to deal with the injustices were insufficient compared to the nature of the events that had unfolded.

This is for multiple reasons. The first the nature of the risk means that the production of knowledge and regulations was complicated by a lack of understanding of the different medical pathways, conditions, and interactions which lead to the development of health problems. The number of people affected is also quite small, so the statistics may not appear to be significant. The second is the complexity of the accumulation of data in order to gain reparation and recognition, something which led to a movement to make the process more collective, in order to support the data finding and management process and make the knowledge of the administrative procedures consolidated. Finally, there were instances where the records of employee exposure were falsified, which meant that the access to this information was impossible.

One question that is brought up in the documentary which compelled me is the quesiton of knowing how to mark the borders of acceptable risk. While at the beginning of the nuclear production operations, the question is not raised so much, it comes into play later, when the environmental movements have influenced the governance of the USA enough that the clean-up becomes a question answerable through policy. It is at that point that multiple tensions arise. First, there is the tension between the perception of risk that the workers who worked in the factories had and the outwards sign of protection that the workers doing the clean up wear. And second, once risk is acknowledged, a tension arises related to the extent of risk, and the areas which need to be protected.  As the priest recalls,  people visiting the clean-up site, were in laymen's clothing on one side of the fence, and on the other side of the fence, people were in moon suits. Similarly, a clean-up worker recalls that the houses where they stayed during their time at work were just on the other side of the fence from the clean up site where they had to wear protective gear.

Another tension which intrigued me in this documentary is between the representation of exposed workers as heroes and as victims. This is something which arises of another context which is mentioned in this documentary which is the military, and some of the exposed workers are veterans. Faced with life altering situations, it is without a doubt useful to have a construction which permits the making of meaning and the perception of oneself as honorable, but it should be investigated what the impact of patriotism and loyalty to country is on perception of risk and injustice. 

The last question which intrigued me in this documentary is that of the construction of the deterrent/protective structure on the nuclear waste site. The priest raises an interesting point when he asks whether the best use of the money spent was in constructing this structure that would, according to him, be attractive to children, instead of providing financial support and health care to the people affected by the radiation. It really made me question the value of creating an attractive memorial like structure, and the discourse it conveys on the nature of the events which unfolded there. And of course, the classic question of the management of essential message bearing structures that wil long outlive us.

The original labor of this quotidian Anthropocene is the labor of weapon production. The economy of war produced a situation where workers' security or the environment was absolutely not the main priority. As someone said in the documentary, there was no reason for workers not to be protected as early as 1942. After the war, work had to be put in to construct more permanent buildings which would improve worker safety and allow better control of the uranium purification process. Another form of labor was put in to structure the practices of control of worker's contamination.

Another labor, which was provoked by the anthropocenics in this situation is that of the medical professionals who surrounded and treated the workers. For example, Mr Schneider's first cancer was discovered by his chiropractor.

Another provoked labor is the activist labor of the workers, children and activist who are impacted by the health risks of working in those factories. The paperwork and administrative labor required to obtain compensation for health impacts is very high, and requires expert help, organizing in a collective was another labor which permitted the previous ones, and allowed for the pooling of ressources and knowledge to properly defend the rights of workers. A labor which is related to this one is the labor of workers' unions to fight for accurate representation of the risks entailed by the employment of their members and to support the protection of workers.

Related to the labor within the factories themselves is the labor of clean-ups, which contained some of the same risks, with more protection and less exposure time than the original problem producing labor. There is also the labor of knowledge production and risk assessment by individual workers who were coerced in putting their livelihoods above their health. One worker says he had severe nosebleeds on the job and was warned/threatened by his supervisor that he would be fired if he told someone about it.

The final labor that I noticed being covered in this documentary is the labor of everyday clean up. Some people recall cleaning radioactive dust off of their laundry that they set to dry outside, and someone else recalls her brother cleaning the dust off his car in the morning.