Analyze

publication of data in open science

I am particularly interested in comparative approaches on how different sites (and academics in those places or studying them) are thinking about COVID in their localities. How are people dealing with issues of trust and information in an era when entire archives are in danger (like the police archives in Guatemala which had been rescued in the past decade and are now in danger). This question expands beyond COVID but has become crucial in the context of Ecuador where reliable data is hard to come by. Another important aspect for us is how indigenous communities are fairing amid the pandemic (here a fabulous article on the terrible situation in Brazil—which is not so different to Ecuador's). This touches on issues of communication, infrastructure, language, systemic racism, and more. Finally, I am also interested in ways in which we might be a able to contribute to some of these issues from our academic spaces. Collaborators (which can take many forms) are certainly welcomed.

I'm a co-founder of Kaleidos - Center for Interdisciplinary Ethnography, a space for academic experimentations supported by two top ranked universities in Ecuador (University of Cuenca and FLACSO-Ecuador). We are located in Cuenca, where I am assistant professor of medical anthropology. Together with a team of researchers we have been tracking covid19 with a specific focus on Latin America through Spanish language podcasts, collective texts, webinars, and online forums.

My current ethnographic interest is on documenting data distrust networks from the neighborhood scale to the national level in Ecuador, and how these networks have produced distinctive approaches (and failures) to the current pandemic.

I was interested in learning about how air pollution has been talked/researched in the New Orleans area. Mainly, the need to highlight local specificities and historical analysis. A 1950s study on air pollution in New Orleans (Air Pollution and New Orleans Asthma), for instance, documented asthma incidence among black communities (sadly the article still uses the N word), and its relationship to underground fire burning in nearby dumps. The study is more comprehensive and did a census in part of the city as well as a number of medical tests on 84 individuals.

A second study, this one from 2007, documented asthma in children (Prevalence of Indoor Allergen Exposures among New Orleans Children with Asthma). It has a relevant focus of the differences between document indoor allergen exposure in different areas of the US and how subtropical weather in NOLA plays an important role in the kinds of allergies that children with asthma face. One of the main findings of the study can be summarized in the following quote “our data show that asthmatic children in New Orleans may be exposed to a greater number of allergens at moderate to high levels compared to asthmatic children living in other inner cities and to the general population.”

Finally, a third reference, the book Race, Place, and Environmental Justice After Hurricane Katrina: Struggles to Reclaim, Rebuild, and Revitalize New Orleans and the Gulf Coast talks about something, others have already pointed out (@Omar Perez Figueroa for instance) regarding areas that undergo dramatic change and hardship after natural disasters like hurricane Katrina and Rita. This book, particularly chapter 5 (though I can’t access the full text) explains the highly toxic environment that resulted (and remains) in the New Orleans area due to little clean-up action following the disasters. Lack of funding, deference to poorly resourced local authorities, and policy-failure all affect New Orleans (and many of our sites of research) particularly the fate of vulnerable communities.

The argument is supported with case studies, anecdotal evidence from medical officers, research on the history of the article, and news reports regarding the law. 

The policy doesn't specifically address the elderly or children, who are very vulnerable populations during disasters/ emergencies (but it does address pets and animals in Title IV).

The narrative is sustained through Atul Gawande's experience and research into improving his end-of-life care for his own patients by meeting with other healthcare professionals (oncologists, palliative care experts and surgeons), and analyzing his actions with his father. The film has strong emotional appeal, as loss of loved ones is a common experience, and difficult for all parties involved. 

Scientific info isn't really in depth (disease processes aren't talked about) mostly just psycho-social aspects discussed. 

Violence against health care workers is the subject of the article so emergency medical response is addressed directly, but mostly within the context of humanitarian aid. 

While the practical yield of such circumscribed inquiry has been enormous, exclusive focus on molecular­level phenomena has contributed to the increasing “desocialization” of scientific inquiry: a tendency to ask only biological questions about what are in fact biosocial phenomena [1].

What would happen if race and insurance status no longer determined who had access to the standard of care?

Sometimes public health crises, such as the AIDS pandemic in Africa, can lead to bold and specific interventions, such as the campaign to provide AIDS prevention and care as a public good [54].

In this struggle, equity in healthcare is our responsibility.