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pece_annotation_1474832541

Sara_Nesheiwat
Annotation of

This website itself doesn't translate the data into information. Researchers collect the data, run analyses and tests, and then post them on the site for the public as well as other researchers. The website doesn't translate or post any data, registry staff does. Participants also do not enter the information into the website. Any information participants need to update or provide must be given directly to the registry staff.

pece_annotation_1475020553

erin_tuttle
Annotation of

The app allows users to download compatible software which streamlines the data compilation process. While raw data is accessibly, the app’s stated goal is to streamline the data into comprehensible statistics and results that can be used for informed decision-making, to this end the data is presented to the user with initial mathematical analysis already completed by the system.