Elizabeth Hoover is an anthropologist and associate professor of environmental science, policy and management at Berkley, who long claimed to be native (receiving grants and research access under this assumption) but has recently admitted otherwise. She has a PhD in anthropology from Brown University with a focus on Environmental and critical Medical Anthropology.
Katsi Cook, Mother’s Milk Project, collecting samples of breast milk: “Katsi has described this work as “barefoot epidemiology,” with Indigenous women developing their own research projects based on community concerns and then collecting their own data.” (90) - 61? – used a private lab to analyze samples because women did not trust the New York State Health Department
“Barefoot epidemiology” is a concept borrowed from China’s “barefoot doctors”—community-level health workers who brought basic care to China’s countryside in the mid-twentieth century. Hipgrave, “Communicable Disease Control.” According to a “workers’ manual” published by the International Labour Organization, barefoot research is often qualitative, and qualitative research is not the standard approach for conducting health studies, which tend to be based on laboratory experiments and clinical findings. See Keith et al., Barefoot Research” (294)
Civic Dislocation: “In many instances Mohawks experienced what Sheila Jasanoff calls “civic dislocation,” which she defines as a mismatch between what governmental institutions were supposed to do for the public, and what they did in reality. In the dislocated state, trust in government vanished and people looked to other institutions . . . for information and advice to restore their security. It was as if the gears of democracy had spun loose, causing citizens, at least temporarily, to disengage from the state” (118)
“Dennis Wiedman describes these negative sociocultural changes and structures of disempowerment as “chronicities of modernity,” which produce everyday behaviors that limit physical activities while promoting high caloric intake and psychosocial stress” (235)
Third space of sovereignty: “This tension that arises when community members challenge political bodies while simultaneously demanding that they address the issues of the community has been theorized by political scientist Kevin Bruyneel, who describes how for centuries Indigenous political actors have demanded rights and resources from the American settler state while also challenging the imposition of colonial rule on their lives. He calls this resistance a “third space of sovereignty” that resides neither inside nor outside the American political system, but exists on the very boundaries of that system.” (259)
“Akwesasne residents’ main criticism of the Mount Sinai study was that at its conclusion, the researchers packed up and left, and community members felt they had not received any useful information.” (76)
“As scholars of tribal health risk evaluation Stuart Harris and Barbara Harper explain, among most tribal people, individual and collective well-being comes from being part of a healthy community with access to heritage resources and ancestral lands, which allow community members to satisfy the personal responsibilities of participating in traditional activities and providing for their families.” (96)
“By placing “race/ethnicity” on a list of diabetes causes without qualifying why it is there, the CDC neglects the underlying root cause—that race/ethnicity is often associated also with class, education, levels of stress, and access to health care and fresh foods.” (231)
“Chaufan argues that to counter the focus on the medicalized aspects of diabetes, which has led to the individualization and depoliticization of the issue, a political ecology framework needs to be applied to the disease, one that is concerned with the social, economic, and political institutions of the human environments where diabetes is emerging.39 Such a framework would highlight how diabetes rates among Mohawk people are influenced more by changes in the natural environment and home environments than by genetic makeup.” (231 - 232)
“Understanding community conceptions of this intertwined “social and biological history” is important because, as Juliet McMullin notes, examining the intersections of health, identity, family, and the environment helps to “denaturalize biomedical definitions of health and moves us toward including knowledge that is based on a shared history of sovereignty, capitalist encounters, resistance, and integrated innovation.”61 The inclusion of this knowledge can lead to the crafting of interventions that community members see as addressing the root causes of their health conditions and promoting better health.” (249)
Hoover’s book is an analysis of the material and psychosocial effects of industrial pollution along the St. Lawrence River, which runs through the Mohawk community of Akwesasne. Hoover focuses on resistance to private and state efforts at land enclosures and economic rearrangements. Hoover shows how legacy of industrialization and pollution (GM and Alocoa, primarily) ruptured Mohawk relationships with the river, and incurred on tribal sovereignty by disturbing the ability to safely farm, garden, raise livestock, gather, and recreate in ways fostered important connections between and amongst people and the land (“ecocultural relationships”). Hoover describes how confusion about risk and exposure is culturally produced and develops the "Three Bodies" analytic framework to show how individual, social and political bodies are entangled in the process of social and biophysical suffering.
Hoover also highlights how in response to pollution, Mohawk projects of resistance emerged - a newspaper, documentary films, and community-based health impacts research. Hoover conducts a comparative history of two research projects tracking the effects on industrial-chemical contamination on Akwesasne people and wildlife: the Mount Sinai School of Medicine’s epidemiological study in the 1980s, which failed to engage Akwesasne people in the production of knowledge or share results meaningfully, and the SUNY-Albany School of Public Health Superfund Basic Research Program study (in the 1990s and 200s), which ultimately began incorporating key theoretical and methodological principles of CBPR.
“It is difficult to imagine any of these studies exerting as much of an impact on public discourse and policy as they did if they had not been closely connected to litigation, advocacy, and regulatory interest in addressing the emerging issue of environmental justice.” (6)
“EJ scholarship has uncovered environmental and health disparities based not only on race, class, and gender, but also on ethnicity, nationality, indigenous status, immigration and citizenship status, sexual orientation, age, and the intersections among these categories (Nyseth-Brehm & Pellow, 2014; Chakraborty, Collins, & Grineski, 2016; Gaard, 2018). Activists are increasingly appealing to these diverse axes of identity to mobilize broad-based organizing on environmental, healthcare, and immigration policies (Hestres & Nisbet, 2018).” (9)
“In Europe, EJ is often seen as an extension of protections for human rights, including rights of access to environmental information, participation in decision making, and access to the courts, which are enshrined in the United Nations Economic Convention for Europe’s1998 Aarhus Convention (Mason, 2010). In the global South, EJ issues are more often framed as matters of climate justice, participatory and sustainable development and conservation, indigenous and women’s rights, food and energy sovereignty, workplace safety and health, or the environmentalism of the poor (Carmin & Agyeman, 2011; Carruthers, 2008; Martinez-Alier, 2002; Reed & George, 2018; Walker, 2012).” (10)
“The goals of community-engaged scholarship are the generation, exchange and application of mutually beneficial and socially useful knowledge and practices developed through active partnerships between the academy and the community (Engagement Scholarship Consortium, 2018).” (11)
“A more inclusive scholarly process is crucial for strengthening marginalized groups’ rights to access and create knowledge that can help build their power to influence regulation, policy, and institutional practices. ES is scholarship “done with, rather than for or on, a community” (Furco, 2005, p. 10), and this is reason alone to prefer ES to other modes of inquiry into EJ.” (15)
“Ensuring that map making is a democratic process owned and controlled by community members requires that local people, not outside researchers, define the geographic or other boundaries over what counts as part of the “community.””(29)
“EJ research can also ground-truth existing regulatory data that is out-of-date or incomplete, especially emissions data that is reported by industry. In addition, ground-truthing can show how environmental standards for broad geographic areas can fail to protect EJ communities from pollution hot spots that exceed those standards.” (31)
“Data scientists can also use large data sets and algorithms to develop new measures of environmental and social inequities. For example, a team led by researchers at the University of Minnesota recently created a “pollution inequity” metric, which measures the difference between the environmental health damage caused and experienced by a group or individual...” (33)
“While real-time analysis of crowdsourced data can help track the immediate effects of environmental disasters, it may not be as useful for documenting long-term, cumulative toxic exposures typical of many EJ issues. … Much of that expertise is concentrated in corporate, government, and academic institutions, which may be unable or unwilling to collaborate with community-based EJ organizations. EJ researchers could play a valuable role in helping to foster big data literacy…” (33)
“EJ storytelling is a means of gathering testimonial evidence for research and organizing (Evans, 2002). Stories are a grassroots form of making meaning that is often more accessible and immediate in its impacts than academic research, building commitment to collective action (Newman, 2012). Storytelling lends itself to communicating complex causality in a form that can be more memorable than scientific data (Griffiths, 2007).” (34)
In the “Introduction” and “Foundations” sections, the author describes the utility of an “engaged scholarship” approach to academic environmental justice research and outlines several models for engaged scholarship. These models lie along the spectra of the apolitical to the political, and include different types of development, types of engagement, and types of expertise. The author argues in favor of an engaged scholarship approach to EJ as a way to root EJ research in actual EiJ problems and EJ needs. Note that the author defines EJ with the four dimensions of distributive justice, procedural justice, process justice, and restorative/corrective justice.
The sections II. METHODS and III. CHALLENGES AND RESPONSES detail methods and potential pitfalls in engaged scholarship with local communities. Methods can include: investment in easy-to-use and low cost technologies for citizen science uses (e.g., online mapping tools, low cost air quality monitoring devices), using storytelling methods for cultural research and to advance EJ goals, and adequately training and preparing researchers for community collaborations (see Hyde (2017) framework on pg. 38). Pitfalls can include: scholars assuming homogeneity in a community, tensions between community goals and academic goals (e.g., scholarly productivity vs. community education), and limitations imposed by academic IRBs for collaboration. The author provides several examples of community collaboration focus, with an apparent focus on citizen science/crowdsourced data collection efforts.
The examples of community and participatory-based work in action can be used to talk about the importance of qualitative data and how to frame people without formal scientific training as experts and engaged researchers.
I am curious if theater of the oppressed has been used in STEM and/or environmental education? Found the following
Raphale’s call for future research along the following lines: systems thinking, investigation into why things work and fail, how aspirations of collaborative projects are met and unmet, how indeterminacy and complexity characterize participatory action and research–are questions that I am interrogating through my research as well.
The table on p. 26 on “Levels of Community Participation in Research” naturally raises the question for the reader: Where on this continuum are we?
The concise overview of engaged scholarship models: how do they overlap with similar approaches in pedagogy?
What political developments have shaped engaged scholarship? For example, neoliberal restructuring has appropriated CBPR for market-oriented research and strengthened corporate-humanitarian networks rather than developing community capacities.
I want to think more about the idea of the timeline of community-university partnerships: are there benefits to short-term partnerships as well? Do all partnerships need to be sustainable to be mutually beneficial and meaningful?
The author, Chad Raphael, is the Faculty Associate for Sustainability across the Curriculum at Santa Clara University and Co-Coordinator of the Environmental Justice and the Common Good Initiative. Raphael is considered a prominent scholar in political and environmental communication and has served as a consultant in designing communication campaigns for many environmental organizations. In his position as researcher and professor, Raphael remains committed to integrating his research and teaching by continually co-publishing with undergraduate students.
“Reflexivity should act as a check on academic anxieties about scholarly identity and status, on professional and disciplinary insularity, and self-regard. Reflexivity reminds us that discipline-building – increasing access to grants, recognition, and seats at the policy table – is a means to larger ends, not an end in itself. It pushes us to worry less about whether we are distinguishing ourselves from other fields and more about whether we are collaborating well with scholars from other disciplines and with community actors to address society’s most significant challenges and imagine their solutions.” (Raphael, p 16)
“The research cited above has begun to document inequities within countries, and between countries in the global North and South, and how they are driven by colonial legacies, corporate exploitation, governmental policies and corruption, intergovernmental agreements and organizations, international foundations, and consumer demand. However, scholars from a handful of countries account for most of this research. Of all scholarly articles published in 2009 with the keyword “environmental justice,” almost half were authored by researchers based in the U.S., 20 percent were written by authors in the U.K., and 60 percent exclusively addressed U.S. cases (Reed & George, 2011). While this distribution in part reflects global scholars’ preference for other terms for EJ issues, it should also alert us to the need to extend the scholarly community beyond dominant Anglo-American academic institutions and to address EJ around the globe.” (Raphael, p 11)