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California, USA

Misria

In this poster, we share preliminary reflections on the ways in which hermeneutic injustice emerges and operates within educational settings and interactions. Hermeneutic injustice is a type of epistemic injustice that occurs when someone’s experiences are not well understood by themselves or by others, either due to unavailability of known concepts or due to systemic barriers that produce non-knowing (Fricker 2007). In 2021, we entered into a collaborative project to design a high school curriculum on environmental injustice and climate change for California’s K-12 students. Although the project convenors aspired to support the diversity of California’s K-12 student population through representational inclusivity across the program participant, they reproduced essentialized notions of what it means to be an “included subject”. In our first inperson meetings, activities intended to invite difference in the curriculum writing and design community were encountered by participants as an opportunity to point to the margins of that community. Who was in the room and who was not? Initial counts excluded some writers whose identity was not readily apparent by race, ethnicity, or age. Some individuals who, to their consternation, were assumed to be white, revealed themselves as people of color. The project chose the “storyline model” of curriculum design to bring coherence across the teams. The model was developed by science educators to promote student agency and active learning. Lessons start with an anchoring phenomenon, which should hook students and produce enough questions to sustain inquiry cycles that culminate in consensus making. As a result, each grade-level unit of our curriculum was intended to focus on a single environmental phenomenon, like wildfire. However, informed by Gregory Bateson’s theory of learning, we sought to foreground complexity by recursively analyzing environmental injustice through case study analysis of many hazards, injustices, and places. It took multiple meetings over several months to arrive at an articulation of environmental injustice as our central phenomenon that recognizes the compounding impacts of both climate change and toxic pollution. It also required restructuring the working relationships between the project's administrative arm, the curriculum consultants, and the writing team. The image we include is a photograph of an exercise done together with another HS team as we were tasked to clarify the aims and goals of our imagined lessons. As is evidenced in the photograph, each writing team found it difficult to articulate learning outcomes as a series of checklists, or goals, separate from skill-development that represented the dynamic need for curriculum capable of examining climate change and the environmental justice needs for California’s students.

Tebbe, Margaret, Tanio, Nadine, and Srigyan, Prerna. 2023.  "Reflections on Hermeneutical Injustice in K-12 Curriculum Development." In 4S Paraconference X EiJ: Building a Global Record, curated by Misria Shaik Ali, Kim Fortun, Phillip Baum and Prerna Srigyan. Annual Meeting of the Society of Social Studies of Science. Honolulu, Hawaii, Nov 8-11.

Louisiana Tumor Registry Research & Critiques

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Lawsuit led by River Region Crime Commission (RRCC) to retrieve LTR information

http://www.la-fcca.org/Opinions/PUB2004/2004-04/2003CA0079.Apr2004.Pub.12.pdf 

Article by Barbara Allen (2005). The problem with epidemiology data in assessing environmental health impacts of toxic sites

https://www.witpress.com/Secure/elibrary/papers/EEH05/EEH05048FU.pdf 

“The registry focuses on cancer incidence, which can be caused by a number of factors, instead of the risk faced by people exposed to emissions from industrial operations. In Terrell's view, that has allowed companies and by the state Department of Environmental Quality to misconstrue its significance.” (Mitchell 2021)

“While scientists will argue that the one-year reporting standard, as set by the state statute, is arbitrary, a five-year reporting timetable is equally arbitrary and less sensitive to changing health patterns. More problematic, however, were the eight large geographic regions. Each region consisted of as many as twelve parishes (a parish is a county in Louisiana) and in the case of the regions that include the parishes of the chemical corridor, industrial parishes are “diluted” by non-industrial parishes, making the determination of elevated cancer rates near chemical plants impossible to decide. The LTR also tends to downplay the rarer cancers, both adult and pediatric, saying the “rates tend to fluctuate because of small numbers...[and] are less reliable and should be cautiously interpreted” [4]. This infuriates the residents and researchers as these rare cancers are of major concern as they may be linked to chemical exposure.”

Response to new health study (March 2021) 

https://www.humanrightsnetwork.org/press/2021/3/22/new-public-health-study-does-little-to-allay-fears-in-cancer-alley 

 http://denka-pe.com/about-us/denkaunhr/ 

Tumor Registry Data Source

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“The Louisiana Tumor Registry (LTR) collects information from the entire state on the incidence of cancer. This information includes the types of cancer (morphology, grade, and behavior), anatomic location, extent of cancer at the time of diagnosis (stage), treatment, and outcomes (survival and mortality).”

 “[A]ny health care facility or provider diagnosing or treating cancer patients shall report each case of cancer to the registry. It also protects health care facilities and providers that disclose confidential data in good faith to the LTR from damages arising from such disclosures.”, see cancer reporting.

Toxic Release Inventory Mission

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Louisiana State University (LSU) School of Public Health

Mission: “To collect and report complete, high-quality, and timely population-based cancer data in Louisiana to support cancer research, control, and prevention.” 

The LTR was formally founded in 1979 under the auspices of Louisiana’s Office of Public Health.

In 1992, the U.S. Congress passed The Cancer Registries Amendment Act making official a national program of cancer registries and monies to fund them.