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Bahía de los Ángeles, México.

Misria

Youth's brilliance and their fascination with the wickedness of plastic pollution are forming shoals of abundant possibility and collective futurity amid the rising tides of environmental destruction hitting Bahía de los Ángeles, México. Working in an entangled community with professional scientists, government conservationists, traditional outdoor educators, store owners, school principals, chefs, artists, and family this group of youth (ages 7-17) labor and dream as scientists and cartographers of the future. They voice unpopular questions and concerns, embody lives they mourn leaving behind but understand can't persist, demand more from adults and tourists, labor for imperfect data that they hope will hold community accountability, and (re)map community infrastructure, tracts of refuse, flows of water, chains of fossil fuel transport, food systems, and fishing practices. Despite these undeniable contributions, often adult partners in this work are still slow to take youth thinking and resistance seriously---it is easier to mediate on shortcomings or flaws in youths' epistemologies. Ignoring these sophisticated shoals is a flagrant dismissal of the pluralist thought and perspective required to attend, nonetheless halt, environmental injustices. As adults labor on/for youths' futures there should be a constant disruption of who holds expertise and why and rigorous attention given to youth voice.

Fowler, Kelsie. 2023. "Youth and Community Knowledges Create Thick Shoals of Abundance Amid the Plastiocene." In 4S Paraconference X EiJ: Building a Global Record, curated by Misria Shaik Ali, Kim Fortun, Phillip Baum and Prerna Srigyan. Annual Meeting of the Society of Social Studies of Science. Honolulu, Hawai'i, Nov 8-11.

Louisiana Tumor Registry Research & Critiques

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Lawsuit led by River Region Crime Commission (RRCC) to retrieve LTR information

http://www.la-fcca.org/Opinions/PUB2004/2004-04/2003CA0079.Apr2004.Pub.12.pdf 

Article by Barbara Allen (2005). The problem with epidemiology data in assessing environmental health impacts of toxic sites

https://www.witpress.com/Secure/elibrary/papers/EEH05/EEH05048FU.pdf 

“The registry focuses on cancer incidence, which can be caused by a number of factors, instead of the risk faced by people exposed to emissions from industrial operations. In Terrell's view, that has allowed companies and by the state Department of Environmental Quality to misconstrue its significance.” (Mitchell 2021)

“While scientists will argue that the one-year reporting standard, as set by the state statute, is arbitrary, a five-year reporting timetable is equally arbitrary and less sensitive to changing health patterns. More problematic, however, were the eight large geographic regions. Each region consisted of as many as twelve parishes (a parish is a county in Louisiana) and in the case of the regions that include the parishes of the chemical corridor, industrial parishes are “diluted” by non-industrial parishes, making the determination of elevated cancer rates near chemical plants impossible to decide. The LTR also tends to downplay the rarer cancers, both adult and pediatric, saying the “rates tend to fluctuate because of small numbers...[and] are less reliable and should be cautiously interpreted” [4]. This infuriates the residents and researchers as these rare cancers are of major concern as they may be linked to chemical exposure.”

Response to new health study (March 2021) 

https://www.humanrightsnetwork.org/press/2021/3/22/new-public-health-study-does-little-to-allay-fears-in-cancer-alley 

 http://denka-pe.com/about-us/denkaunhr/ 

Tumor Registry Data Source

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“The Louisiana Tumor Registry (LTR) collects information from the entire state on the incidence of cancer. This information includes the types of cancer (morphology, grade, and behavior), anatomic location, extent of cancer at the time of diagnosis (stage), treatment, and outcomes (survival and mortality).”

 “[A]ny health care facility or provider diagnosing or treating cancer patients shall report each case of cancer to the registry. It also protects health care facilities and providers that disclose confidential data in good faith to the LTR from damages arising from such disclosures.”, see cancer reporting.

Toxic Release Inventory Mission

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Louisiana State University (LSU) School of Public Health

Mission: “To collect and report complete, high-quality, and timely population-based cancer data in Louisiana to support cancer research, control, and prevention.” 

The LTR was formally founded in 1979 under the auspices of Louisiana’s Office of Public Health.

In 1992, the U.S. Congress passed The Cancer Registries Amendment Act making official a national program of cancer registries and monies to fund them.