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What changes in public health frameworks, policies, or practices is this document promoting?

margauxf

"An EJ approach could provide new and different tactics to prisoner advocates and their allies.  If we understand death row inmates to be a particularly vulnerable population, could the EPA itself become more involved in monitoring conditions, and if so, what are the benefits or risks of such an approach? " (219)

"Instead of environmentally invisible spaces, death row should be viewed as involuntary state homes and therefore particularly deserving of attention and regulation. " (220)

"the EPA’s unique powers can be characterized as (1) information gathering, and (2) enforcement actions.93  The EPA’s tools apply to carceral facilities as they would any other business or agency.  By statute, the EPA has the authority to enter and inspect facilities, to request information, and assist facilities in developing or remedying violations." (220) ...  "Individual EPA offices have at times attempted to examine the conditions of incarceration at several federal facilities, primarily through information gathering.  For example, under an agreement between the EPA and the federal Bureau of Prisons (BOP) in 2007, over a dozen facilities were audited for environmental hazards.100  These consent arrangements can promote environmental improvement by limiting the potential sanctions for discovered violations." (221)

"Through an environmental justice lens, we may see patterns that were previously hidden.  Unlike traditional prisoner advocacy tools, environmental assessments include cumulative impacts over time and in context, rather than single isolated acts." (224) ... "A pattern-based approach may help to discern the underlying factors that result in diagnoses like Glenn’s. " (225)

"An EJ approach fundamentally centers the voices of the impacted and allows for contextual reasoning.  Although carceral facilities, and death row in particular, are externally perceived as sites of punishment, incarcerated people may have a different view.  Glenn Ford’s cell, where he was confined days at a time, was his involuntary home.  Viewing jails and prisons as homes illuminates the humanity of the people who live there.  Understanding these spaces as homes underlines the need for carceral facilities to be safe and for individuals to be protected from all types of harm, environmental and otherwise.124 " (225)

How are the links between environmental conditions and health articulated?

margauxf

"Based on Glenn Ford’s experience, the conditions on death row in Louisiana can be grouped into the following environmental hazards:  indoor air pollution, water pollution, hazardous waste, and exposure to lead." (217)

What forms of data divergence does the document address or produce?

margauxf

"Glenn’s story of the conditions on death row is a story about environmental justice.  His accounting forces us to see prisons as involuntary homes, where residents are held captive to environmental harms.  Yet, the experience of Glenn and others sentenced to live on death row are largely excluded from environmental justice conversations.10" (207)

"The U.S. Environmental Protection Agency (EPA) itself has acknowledged that carceral facilities present environmental challenges.11  In 2007, the EPA noted that “[p]otential environmental hazards at federal prisons are associated with various operations such as heating and cooling, wastewater treatment, hazardous waste and trash disposal, asbestos management, drinking water supply, pesticide use, and vehicle maintenance.”12  Yet, the EPA, which is the lead federal agency for environmental justice, completely excluded jails and prisons from its 2011 planning document for addressing environmental justice through 2014.13  Similarly, the EPA’s 2020 Action Agenda for environmental justice does not even mention carceral facilities, much less recognize prisons and jails as environmentally “overburdened communities.”14 " (207)

"Data on conditions within carceral facilities is generally not available,53 and even when it is available, the data is rarely complete." (214)

What is the main argument, narrative and effect of this text?

margauxf

The authors review literature on the datafication of health, which they identify as the way through which health has been quantified on a number of different scales and registers. They focus primarily on the datafication of health in clinical health care and self-care practices, rather than medical research and public health infrastructures. From this literature, they identify three key themes: datafied power (the ways through which data permeates and exerts power over forms of life), living with data (focused on datafication as an intimate form of surveillance, and a technology of the self), and data-human mediations (which emphasizes the nonhuman elements mediating datafication dynamics and experiences—such as algorithms, data infrastructure and data itself).

 

In examining literature on datafied power, the authors acknowledge a lack of scholarship on understanding data and datafication in terms agency, rather than simply power and domination. For instance, data is sometimes mobilized in “creative and even pioneering ways (Rapp 2016)” (265).

 

They describe literature on “living with data” as increasingly focus examining the social, narrative, and affective dimensions of data practices and experiences (e.g. work on the “Quantified Self,” a group seeking self-knowledge through numbers – a form of relationality that might be described as datasociality). Some scholars have argued that data can render “‘feelings and problems more tangible and comparable” (Sharon & Zandbergen 2016, p. 11)” (267). Some have also acknowledged as well a “curious resonance between the vision of empowered, resisting individuals that many ethnographers of self-tracking celebrate, and the rhetoric of consumer empowerment found in discourses of digital health (Schull 2017, Sharon 2017)” (267).

 

The literature on data-human mediations emphasizes the agency, liveliness and/or performativity of nonhuman elements—essentially, how they structure and shape the possibilities for action. For instance: “as social expectations of normality and health become embedded in tracking devices’ target numbers, presentation of scores, and gamified incentives (Depper & Howe 2017, Whitson 2013), a “numerical ontology” comes to suffuse everyday practices and “the ways in which people relate to their own bodies” (Oxlund 2012, p. 53; see also Jethani 2015, p. 40)” (269). Perspectives and action can be enabled or disabled by wide variety of factors: the design and performativity of data technology software (user interface, operational and analytical algorithms), hardware (devices, sensors), data itself (as illustrated in different ways), and data infrastructures (labs, data centers, serve and cloud storage, and networks that organize how data is stored and circulated). An analytically constructive focus in this literature has emerged by applying the concept of “assemblage” as a way of tracing how data moves: “where it flows, where it finds impasses, how algorithms act on it along the way” (270).

 

Lastly, the authors identify scholarship on “data activism” as an emerging focus on exploring how data technology capacities might be employed to promote social justice, collective action, and political participation, as well as to challenged dominant norms and ideologies: “Individual self-tracking data, for instance, can have social and political potential when it is pooled to identify health inequalities, collective environmental exposure, or disparities in quality of life (Gabrys 2014).” (271)