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Oceania

Misria

Emerging technologies are increasingly being sought as interventions to intractable environmental and public health issues that promise to intensify on our warming planet. Genetically engineered mosquitoes could curb the impacts of mosquito-borne diseases like malaria and dengue. Solar geoengineering could use cloud thinning or aerosol scattering to reflect sunlight back into space and cool the planet. Adequate regulatory and governance mechanisms do not yet exist for these technologies, the impacts of which span international boundaries, and have the power to irreversibly alter environments. There is wide recognition from national and international bodies that decision-making processes surrounding these technologies must engage local and Indigenous communities whose lands and resources would be impacted by their trial and deployment. In response, public, community, and stakeholder “engagement” has taken center stage in the discourse on emerging environmental technology governance. Scientists and technologists are now compelled to engage publics and communities, as they recognize that some form of engagement or authorization will be requisite to the application of their technologies outside the laboratory. The language of participatory engagement abounds in scientific and governance literature on environmental technologies. These texts espouse the importance of co-design, relationship-building, shared decision-making, and mutual learning, and recognize the uneven power relations in which environmental decisions have historically been made. Yet, emergent practices of engagement leave much to be desired in terms of realizing their stated aspirations. Deficit model approaches frame publics and communities primarily as “lay people” needing to be educated before weighing in on decisions. In my fieldwork on one Pacific island where genetically modified mosquitoes are being considered for endangered bird conservation, I observed a focus group in a market research firm in which local and Indigenous residents were tested on their knowledge of invasive species biology and asked to rank radio advertisements and slogans about the modified mosquitoes. The conflation of engagement with marketing strategies and public relations campaigns prioritize the management of public perception over genuine dialogue or mutual learning. In theory, all the interest in engagement promises to open up meaningful possibilities for local and Indigenous communities to realize their rights to self-determination. In practice, strategic and instrumental approaches instead subdue opposition and manufacture consent. Legal mechanisms are needed to codify Indigenous rights in decision-making processes. Alternative approaches are needed that widen the focus beyond a single technofix to let communities define environmental challenges and collectively imagine solutions. Opposition should be read not as a barrier but as a generative site for inquiry, as often it is not the technology itself being refused but the exclusionary processes that surround its use. The most just solutions are likely to emerge from those very refusals. 

Taitingfong, Riley. 2023. "It’s all talk: how community engagement is failing in environmental technology governance." In 4S Paraconference X EiJ: Building a Global Record, curated by Misria Shaik Ali, Kim Fortun, Phillip Baum and Prerna Srigyan. Annual Meeting of the Society of Social Studies of Science. Honolulu, Hawai'i, Nov 8-11.

Louisiana Tumor Registry Research & Critiques

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Lawsuit led by River Region Crime Commission (RRCC) to retrieve LTR information

http://www.la-fcca.org/Opinions/PUB2004/2004-04/2003CA0079.Apr2004.Pub.12.pdf 

Article by Barbara Allen (2005). The problem with epidemiology data in assessing environmental health impacts of toxic sites

https://www.witpress.com/Secure/elibrary/papers/EEH05/EEH05048FU.pdf 

“The registry focuses on cancer incidence, which can be caused by a number of factors, instead of the risk faced by people exposed to emissions from industrial operations. In Terrell's view, that has allowed companies and by the state Department of Environmental Quality to misconstrue its significance.” (Mitchell 2021)

“While scientists will argue that the one-year reporting standard, as set by the state statute, is arbitrary, a five-year reporting timetable is equally arbitrary and less sensitive to changing health patterns. More problematic, however, were the eight large geographic regions. Each region consisted of as many as twelve parishes (a parish is a county in Louisiana) and in the case of the regions that include the parishes of the chemical corridor, industrial parishes are “diluted” by non-industrial parishes, making the determination of elevated cancer rates near chemical plants impossible to decide. The LTR also tends to downplay the rarer cancers, both adult and pediatric, saying the “rates tend to fluctuate because of small numbers...[and] are less reliable and should be cautiously interpreted” [4]. This infuriates the residents and researchers as these rare cancers are of major concern as they may be linked to chemical exposure.”

Response to new health study (March 2021) 

https://www.humanrightsnetwork.org/press/2021/3/22/new-public-health-study-does-little-to-allay-fears-in-cancer-alley 

 http://denka-pe.com/about-us/denkaunhr/ 

Tumor Registry Data Source

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“The Louisiana Tumor Registry (LTR) collects information from the entire state on the incidence of cancer. This information includes the types of cancer (morphology, grade, and behavior), anatomic location, extent of cancer at the time of diagnosis (stage), treatment, and outcomes (survival and mortality).”

 “[A]ny health care facility or provider diagnosing or treating cancer patients shall report each case of cancer to the registry. It also protects health care facilities and providers that disclose confidential data in good faith to the LTR from damages arising from such disclosures.”, see cancer reporting.

Toxic Release Inventory Mission

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Louisiana State University (LSU) School of Public Health

Mission: “To collect and report complete, high-quality, and timely population-based cancer data in Louisiana to support cancer research, control, and prevention.” 

The LTR was formally founded in 1979 under the auspices of Louisiana’s Office of Public Health.

In 1992, the U.S. Congress passed The Cancer Registries Amendment Act making official a national program of cancer registries and monies to fund them.