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South Korea

Misria
In response to

In 2019, the National Assembly of the Republic of Korea passed a law identifying particle pollution (also called particulate matter, PM) as a “social disaster” (Framework Act on the Management of Disasters and Safety 2019). It was a response to nationwide attention to particle pollution from 2017, when apocalypse-like particle pollution occurred. It is not uncommon to characterize pollution as a disaster. Pollution is often described in damage-based narratives like disasters because environmental pollution becomes visible when a certain kind of damage occurs (Nixon 2011). PM is a mixture of extremely small particles and liquid droplets (EPA 2023). An established method for assessing the health risks associated with PM is the utilization of government or World Health Organization (WHO) air quality indices. These indices reflect the potential harm to human health based on PM concentrations. However, due to the limitations of the available monitoring data and the assumption of a certain normality according to the air quality index, its utility is diminished for bodies that fall outside this assumed range of normality. The existing practices and knowledge in pollution control had individualized pollution by presuming certain states of normalcy and excluding others. To challenge this, the anti-PM advocates in South Korea have defined, datafied, perceived, and adjusted the toxicity of particulate matter in various ways. They refer to the air quality index given by the WHO or the government, but they also set their own standards to match their needs and ways of life. They actively measure the air quality of their nearest environment and share, compare, and archive their own data online. The fact that the severity of air pollution is differently tolerated by individuals challenges the concept of the toxicity index that presupposes a certain normalcy. Describing pollution as a disaster contributes to environmental injustice by obscuring the underlying context and complexities of pollution. With the values of care, solidarity, and connectivity, capturing different perspectives of living with pollution and listening to stories from different bodies can generate alternative knowledge challenging environmental injustice. Drawing upon the stories of different bodies and lives with pollution, we can imagine other ways of thinking about the environment and pollution that do not externalize risks nor individualize responsibility. 

Kim, Seohyung. 2023. "Beyond the Index: Stories of Otherized Bodies Crafting Resistant Narratives against Environmental Injustice in South Korea." In 4S Paraconference X EiJ: Building a Global Record, curated by Misria Shaik Ali, Kim Fortun, Phillip Baum and Prerna Srigyan. Annual Meeting of the Society of Social Studies of Science. Honolulu, Hawai'i, Nov 8-11.

Louisiana Tumor Registry Research & Critiques

tschuetz
Annotation of
In response to

Lawsuit led by River Region Crime Commission (RRCC) to retrieve LTR information

http://www.la-fcca.org/Opinions/PUB2004/2004-04/2003CA0079.Apr2004.Pub.12.pdf 

Article by Barbara Allen (2005). The problem with epidemiology data in assessing environmental health impacts of toxic sites

https://www.witpress.com/Secure/elibrary/papers/EEH05/EEH05048FU.pdf 

“The registry focuses on cancer incidence, which can be caused by a number of factors, instead of the risk faced by people exposed to emissions from industrial operations. In Terrell's view, that has allowed companies and by the state Department of Environmental Quality to misconstrue its significance.” (Mitchell 2021)

“While scientists will argue that the one-year reporting standard, as set by the state statute, is arbitrary, a five-year reporting timetable is equally arbitrary and less sensitive to changing health patterns. More problematic, however, were the eight large geographic regions. Each region consisted of as many as twelve parishes (a parish is a county in Louisiana) and in the case of the regions that include the parishes of the chemical corridor, industrial parishes are “diluted” by non-industrial parishes, making the determination of elevated cancer rates near chemical plants impossible to decide. The LTR also tends to downplay the rarer cancers, both adult and pediatric, saying the “rates tend to fluctuate because of small numbers...[and] are less reliable and should be cautiously interpreted” [4]. This infuriates the residents and researchers as these rare cancers are of major concern as they may be linked to chemical exposure.”

Response to new health study (March 2021) 

https://www.humanrightsnetwork.org/press/2021/3/22/new-public-health-study-does-little-to-allay-fears-in-cancer-alley 

 http://denka-pe.com/about-us/denkaunhr/ 

Tumor Registry Data Source

tschuetz
Annotation of
In response to

“The Louisiana Tumor Registry (LTR) collects information from the entire state on the incidence of cancer. This information includes the types of cancer (morphology, grade, and behavior), anatomic location, extent of cancer at the time of diagnosis (stage), treatment, and outcomes (survival and mortality).”

 “[A]ny health care facility or provider diagnosing or treating cancer patients shall report each case of cancer to the registry. It also protects health care facilities and providers that disclose confidential data in good faith to the LTR from damages arising from such disclosures.”, see cancer reporting.

Toxic Release Inventory Mission

tschuetz
Annotation of
In response to

Louisiana State University (LSU) School of Public Health

Mission: “To collect and report complete, high-quality, and timely population-based cancer data in Louisiana to support cancer research, control, and prevention.” 

The LTR was formally founded in 1979 under the auspices of Louisiana’s Office of Public Health.

In 1992, the U.S. Congress passed The Cancer Registries Amendment Act making official a national program of cancer registries and monies to fund them.