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CITIZEN SCIENCE

Epistemic negotiation

Stakeholders (indigenous groups, activist, scientist, scholars, etc)

• Throughout the article it became apparent that the individuals being interviewed were rarely prescribed medication and in some cases did not take their medication. I researched the effectiveness of epilepsy medication and severity of not treating seizures in order to better understand that specific illness.
• The article was written using data collected in 1988. Since medical knowledge has changed dramatically since then I decided to look into the current medical situation in Turkey. Although it is challenging to find unbiased opinions it appears that even with advances in medical science, cultural traditions remain an integral part in dealing with illness in many places and needs to be understood when dealing with patients who have those beliefs.
• A majority of the patients interviewed attribute their seizures to a traumatic moment in their past, as I was unaware that epilepsy could be triggered in such a way I looked into the causes of epilepsy. In many cases the cause cannot be identified, however there is significant evidence for epileptic fits being caused by post-traumatic stress as well as neurological trauma and even cardiac issues.

The article focused on treatment and prevention of diseases affecting communities, however I was interested in the initial causes of these epidemics in places that were originally free of disease. I read an article “The Tipping Point” published in the New York Times that explained multiple social theories as to how epidemics begin, using Baltimore as a case study.

I looked into the stated mission and some of the work done by the Partners in Health, as they are a group that responds to epidemics. It was interesting to see that they focus not on immediate emergency response but instead on creating lasting infrastructure to gradually stop epidemics, as well as educating locals on how to react to future emergencies of the same nature.

The article mentions that clinicians are not trained to see social issues as they are so commonplace in everyday life as to become invisible, I felt that was a limited mindset and read an article written by Doctors for America. The article showed that while it is true that comparatively little time is spent on social issues during a doctor’s education, clinicians dealing directly with patients clearly recognize social conditions effecting health. The article suggests that the lack of attention on those issues in the medical field is not due to ignorance but rather the lack of an existing system through which individual doctors can report their experiences and work towards a solution.

Emergency response is addressed in terms of post-incident humanitarian aid, dealing with how to identify and help victims of sexual violence without politicizing their situations to the point of forcing them to relive their trauma or making them feel separated from other people receiving aid.