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Poetry and scientific text

Johanna Storz

What I find really noteworthy in this text is how Julia Watts Belser takes the poem by Leah Lakshmi Piepzna-Samarasinha and includes it into a scientific text. In this way, she not only allows an affected person to have her say, the poem also leaves the reader with a very striking image of the connection between the river and the body, in multiple ways, as well as the connection between enviromental harm and disability.

Disability, environmental harm and diagnoses

Johanna Storz

The text was published in 2020 (Vol. 40, No. 4) by The Ohio State University Libraries in their Journal Disability Studies Quarterly (DSQ). It is, as you can read on their Homepage "a multidisciplinary and international journal of interest to social scientists, scholars in the humanities and arts, disability rights advocates, and others concerned with the issues of people with disabilities. It represents the full range of methods, epistemologies, perspectives, and content that the field of disability studies embraces. DSQ is committed to developing theoretical and practical knowledge about disability and to promoting the full and equal participation of persons with disabilities in society."

The author connects disability theories and activism with environmental justice, this approach allows her to show how disability is related to and through environmental harm, she shows how diagnoses are used politically in these cases, and looks critically at how these processes determine how, when and in what favor human and environmental harm is taken into account. The writing is shaped by the consequences of the Anthropocene like environmental harm linked to health isusses, especially affected are communities of color and poor communities in the United States, here pre-existing patters of structural inequality, already known from climate change come into play,  this communities are the most affected and the least responsible.


Open question

Johanna Storz

 

The text left me with a question that I actually often find frustrating in the process of research. On page 6, the authors take up the criticism of a Fukushima resident who says: “[W]hat you call research does not give benefits to local people” (Miyamoto and Ankei, 2008, cited in Ankei, 2013, p.24). The authors here suggest adopting or borrowing terms from the field that are used by citizens to create a more “socially robust science” (Bonhoure et al. 2019, Nowotny, 2003). From the authors' point of view, this can be achieved above all by paying closer and careful attention to the language of citizen organizations and the contexts these groups work in. After further elaboration, the authors call for citizen science terms and concepts developed by, for and with citizens to better reflect the values, priorities, and stakes of its main agents and of all concerned parties. But I am not sure that this approach alone would be sufficient to adequately address such expressed criticism. Perhaps one should ask about the expectations of people one is researching with/about in order to enter into a conversation and to be able to understand this criticism. Perhaps the authors will address this point again in further publications. I think to ask oneself how to deal with this criticism methodically and ethically could also be very fruitful for empirical research in general.

Citizen science as a contested culturally specific term

lclplanche

This text argues that the umbrella term citizen science has come to describe a variety of organizations and structures that function in a very different way. Not only does the notion of citizen science cover a wide variety of situations, but the term itself makes references to different types of organizations and is not neutral. Japan had forms of "citizen science" which pre-existed the introduction of the English term, as heirs to the development of more engaged scientific practices by politically inclined scientists in the 1970s.

The tensions within the use of the term citizen science and its diverse embodiments take the form of the following: basically, the concept of citizen science in Japan is mostly used in the context of top-down participatory approaches. The organizations that emerged after the Fukushima disaster are much more varied than this and exist within a framework that had been previously developed in Japan. This framework included visions of participatory and democratic science making by citizens, for citizens, and of citizens. They are mostly local organizations that are sometimes but not always affiliated to a network. Some of them cooperate with more formal institutions, while others steer clear of any collaboration with formal science or governments, partly because there is a lot of distrust towards these institutions in Japan, especially since the Fukushima accident.

One of the pitfalls of the reputation that citizen science projects have in Japan is that they are associated with the anti-nuclear movement and are therefore associated with the far left. This causes a need for distantiation from any political association, which some of the organizations studied use.