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CITIZEN SCIENCE

Epistemic negotiation

Stakeholders (indigenous groups, activist, scientist, scholars, etc)

I teach anthropology and environmental studies at Haveford College, just outside of Philly. Currently, I'm holed up in a cabin in the Adirondacks in upstate New York with several family members, including my spouse and 4 year old daughter and 3 dogs. I started working on disasters by accident, when one day in 2001 I was walking to class at NYU and saw the World Trade Center buildings on flames. I have known Kim for a few year and I contacted her to connect with folks around Covid-19 and its imacts.

I'm particularly intersted in issues of communal grief, mourning, and bereavement. Also, I'm interested in the religious response to Covid-19.

The major actions from the film is the rise of a grassroots organization. The former residents of Camp Lejeune demand answers and action from the Marine Corps. In 2012, the organization saw the successful passing of legislation (called the Janey Ensminger act) authorizing medical care to families and service members who lived at Camp Lejeune from 1957-1987. As mentioned previously, the film highly emphasizes the power of public to have a hand in policy formation if they are willing to put in the time and effort.

The majority of information in the report comes from interviews performed by Dr. Good himself while on a medical trip in the Middle East. The article also includes stories and tales from other professionals as well; as such, the report encompasses not just experiences with epilepsy in the Middle East, but a multitude of diseases among unique cultural settings. 

The article appears to be a compilation of ethnographic work from various humanitarian organizations in the US, France, and Morocco. The author had first-hand experience working on projects with these organizations at these locations, and thus utilizes this perspective for the majority of the work. She supplements her assertions with data from other recent publications from these organizations, studies by independent researchers, and media analysis. 

The report comes from the United Nations Science Committee's 60th meeting during May of 2013. It informs the general assembly of radiation effects experienced after the Fukushima nuclear disaster by both human and biological life. 

Information provided by the AWSD (Aid Worker Security Database), there were 251 individual attacks in 2013. This, and the subsequent 460 workers involved or affected, is in no way separated according to the aid work the individuals participated in. Thus, all 251 attacks may have been aimed at health care clinics, but only 50 of those injured may have been health care workers; the rest may have been members of peacekeeping forces. Further more, which members of the health care system are being harmed is extremely useful in future aid endeavors. Knowing who is targeted or particularly vulnerable could make the difference in the next incident.

Moreover, any data that is available can be difficult or complicated to obtain. Outside of the nuances of procuring data from different corporations or foundations, many organizations have individual categories for reporting incidents. They may even have different definitions of attacks and incidents-- eerily similar to how German and US officials view sexual assault in different lenses (German officials may often be disinclined to act unless penetration occurs, while US officials have been known to prosecute or bring charges for offenses such as groping).

These definition differences may also lead to an under reporting of incidents. While most available data contains information about abductions or fatalities, very little data can be accessed pertaining to threats or obstructions. This may also color how and what aid workers report; knowing that an incident did not culminate in a kidnapping or death may lead workers to be less inclined to report these issues, for fear of not being taken seriously. Aid workers may also feel that, during some stressful circumstances, reporting something that could be constituted as "mild" would only be a waste of time and resource. 

1) Partners In Health: Mostly known for its work within Haiti and its attempts to alter WHO tuberculosis protocols, this agency appears to be spreading into other international protocols as well. It would be interesting to see what other areas and epidemics they are currently focusing on. 

2) Breast feeding is cited as being a factor of mother to child (MTC) HIV/AIDs transmission. For whatever reason, there seems to be a certain fixation with the "Breast is best" ideology. I would be interested to see where and why this ideal started.

3) As is discussed in the article, the PIH model heavily relies on instituting proximal healthcare into these areas. This, within itself, seems to have a huge impact on serving needy areas. It would be interesting to see how mobile clinics and proximal care during an ongoing disaster effect patient outcomes and care.

1) DOTs: I chose to look into the TB-control program cited by Paul Farmer and several other global health experts. While this is a minute detail, it seems to be a program which encompasses everything wrong with our current model of biosecurity.

2) Doctors without Borders: Despite reading about this organization multiple times, I've yet to do in-depth research on its goals and capabilities. Recent information seems to indicate DWB (or MSF) struggles to be effective in a long-term way in many of its projects.

3) BSE and food safety: It's been quite a while since mad cow disease has reared its misfolded protein head, but it remains a speck on the public health radar. How agencies balance BSE outbreaks and public opinion can often indicate their level of success, both in terms of job fulfillment and ability to minimize public panic. 

1) NIST: The National Institute of Standards and Technology, a federal agency primarily charged with promoting innovation and industrial competitiveness. In the wake of 9/11, FEMA chose this institution as the leading body in the investigation. This choice seems odd, as NIST is not a regulatory agency; what this agency exactly accomplishes would be interesting to know.

2) ASCE: Prior to reading this article, I had never heard of the ASCE. It serves as a representation of Civil Engineering for American engineers. I'd be intrigued to know their role in worldwide disasters. 

3) War of 1812: Nobody knows what happened during this war; literally the most misunderstood war in American history, yet it serves as a main point of contrast for this article.