Search

Fieldnote May 9 2023 - 6:02pm

3/29 fieldnote

 

        這周是我們第一次參與文建站的活動，我和Annabelle見到了李金妹、李金蘭阿嬤兩姊妹，還有何秀妹阿嬤。金蘭阿嬤的五官深邃，總覺得看起來有點酷；金妹阿嬤看起來很聰明，而且相當健談，說話很有條理；秀妹阿嬤則是非常的活潑可愛，說話有很多生動的小動作。

pece_annotation_1478470147

joerene.aviles
Annotation of
In response to

1. Arguably, the new Ukrainian accounting of the Cherobyl unknown was part and parcel of the government's strategies for "knowledge-based" governance and social mobilization. In 1991 and in its first set of laws, the new parliament denounced the Soviet management of Chemobyl as "an act of genocide."

2. On the one hand, the Ukrainian government rejected Western neoliberal prescriptions to downsize its social welfare domain; on the other hand, it presented itself as informed by the principles of a moder risk society. On the one hand, these Chernobyl laws allowed for unprecedented civic organizing; on the other hand, they became distinct venues of corruption through which informal practices of providing or selling access to state privileges and protections (blat) expanded.

3. Government-operated radiation research clinics and non- governmental organizations mediate an informal economy of illness and claims to a "biological citizenship"-a demand for, but limited access to, a form of social welfare based on medical, scientific, and legal criteria that recognize injury and compensate for it.

pece_annotation_1479070408

jaostrander
Annotation of
In response to

This system would be difficult to work with because it publicises patient's  conditions even if it does not directly identify who they are. Some of the diseases or conditions these patients are faced with can be considered humiliating and while the intent of the app is to be educational, a healthcare professionals are faced with the ethical decision as to whether or not post the picture of their patient. A guideline Figure 1 outlines is that before taking and posting a picture the provider should have consent from the patient. Hospitals, clinics, agency, ect. are also faced with whether to allow their members to engage in these activities as patient confidentiality could be called into question. 

pece_annotation_1479077709

joerene.aviles
In response to

The film best addresses health care professionals and families of those with chronic illness, as it shows the medical professionals' struggles and successes in providing comfort, closure, and knowledge in end-of-life care. It provides more empathy to the doctors who may get very involved in their patients' lives and who also feel grief when their patient has to get more bad news or passes away.